No abstract

The telenovela was effective in increasing health care workers' awareness of caregivers stress and cultural approach to EOL decisions. There is need for ongoing efforts to educate HCPs on cultural sensitivity to help ethnically diverse caregivers and their patients benefit from EOL care.

adolescent or young adult (AYA) who are also oncology patients. Methods. Cross-sectional survey study of AYA (age 13-21) with diagnosis of malignancy or life-threating hematologic disorder requiring allogeneic transplant. Results. 153 AYA (95% participation) enrolled in the study. The majority (87.5%) identified at least one loss, and 65% identified the significant loss of a person (n ¼100). The most common losses were grandparent (58%), friend (37%), or pet (35%). A diagnosis of leukemia or myeloproliferative or myelodysplastic disease was associated with an increased likelihood of significant loss (p ¼ 0.047). Individuals rating a loss as highly significant were more likely to endorse that the loss changed their life enormously (p < 0.0001) and that recovery was slow or they ''never got over it'' (p < 0.0001). Even when the loss was rated highly significant, only a minority of AYA discussed the losses often (23%), with the majority speaking about it sometimes (43%) or rarely/never (34%).