BackgroundAn increasingly significant public health issue in Canada, and elsewhere throughout the developed world, pertains to the provision of adequate palliative/end-of-life (P/EOL) care. Informal caregivers who take on the responsibility of providing P/EOL care often experience negative physical, mental, emotional, social and economic consequences. In this article, we specifically examine how Canada's Compassionate Care Benefit (CCB) - a contributory benefits social program aimed at informal P/EOL caregivers - operates as a public health response in sustaining informal caregivers providing P/EOL care, and whether or not it adequately addresses known aspects of caregiver burden that are addressed within the population health promotion (PHP) model.MethodsAs part of a national evaluation of Canada's Compassionate Care Benefit, 57 telephone interviews were conducted with Canadian informal P/EOL caregivers in 5 different provinces, pertaining to the strengths and weaknesses of the CCB and the general caregiving experience. Interview data was coded with Nvivo software and emerging themes were identified by the research team, with such findings published elsewhere. The purpose of the present analysis was identified after comparing the findings to the literature specific to caregiver burden and public health, after which data was analyzed using the PHP model as a guiding framework.ResultsInformal caregivers spoke to several of the determinants of health outlined in the PHP model that are implicated in their burden experience: gender, income and social status, working conditions, health and social services, social support network, and personal health practises and coping strategies. They recognized the need for improving the CCB to better address these determinants.ConclusionsThis study, from the perspective of family caregivers, demonstrates that the CCB is not living up to its full potential in sustaining informal P/EOL caregivers. Effort is required to transform the CCB so that it may fulfill the potential it holds for serving as one public health response to caregiver burden that forms part of a healthy public policy that addresses the determinants of this burden.

Purpose -Family friendly workplace policies (FFWPs) are designed to help employees co-manage work and personal obligations. With the rising aging population and subsequent emphasis on informal caregiving in Canada, Canadian employees will have to maintain paid work while serving as caregivers for family members at end-of-life (EoL). Thus, workplaces need to be prepared to accommodate these workers' requests. The objective of this paper is to explore, qualitatively, the workplace and employee characteristics that are most helpful to employees in EoL caregiving situations from an employer/human resources (HR) perspective so as to inform the development of FFWPs targeting this group. Design/methodology/approach -The authors draw on the findings of five focus group discussions undertaken in 2008 with Canadian employers and HR professionals in the provinces of British Columbia, Manitoba, Ontario, Quebec, and Newfoundland and Labrador. Findings -There are clear differences in how large and small workplaces accommodate employees who are providing EoL care. For instance, larger workplaces are more likely to have set policies around employee EoL care leaves and are unable to accommodate employees' needs that fall outside the scope of these policies; smaller workplaces are less likely to have standard policies for caregiver leaves and are more able to customize responses to leave requests. Employee characteristics such as length of time working for the employer and employee skill level also have a bearing on accommodating employee EoL care leave requests. The presence of HR infrastructure, which is more characteristically found in large workplaces, is also related to the availability of formal FFWPs.Research limitations/implications -The fact that the data were derived from the employer/HR perspective and not those of actual employees is a limitation. The small sample size and convenience (non-random) sampling limits the generalizability of the findings. Originality/value -This research contributes to the limited literature on FFWPs and EoL caregiving accommodations. The findings of this study can directly inform workplace practice, both now and in the years to come, regarding how best to support workers who are also providing informal EoL care to family, friends, and others.

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