This paper focuses on three authors who have narrated their experiences of living with HIV: the Venezuelan José Vicente de Santis, the Cuban Miguel Ángel Fraga, and the Argentine Pablo Pérez. These authors have experienced their illnesses at different times in the 1990s and in other cultural contexts. Therefore, their experiences regarding access to the medication and social perceptions of the disease are also different. However, the three writers have in common the struggle for survival and the deployment of an ethic of resurrection. The article analyzes how HIV-positive people have narrated their permanence in their communities in the first person. How do these authors think of themselves as social subjects after being considered by family and society as dying? The works that the article examines become both esthetic and ethical challenges that raise questions about how to live and narrate the experience of having HIV and engage the reader with questions about how to normalize this disease and reintroduce survivors in social spaces.
Obtuvo su doctorado en Literatura Comparada por la Universidad de Santiago de Compostela, España (2016 RESUMEN: A través de la lectura de las crónicas sobre el VIH/sida de Marta Dillon y Joaquín Hurtado, analizo cómo estos autores narran la convivencia crónica con el VIH que les impone el aprendizaje de nuevas formas de gestionar la vida y de autorrepresentarse. Estudio las crónicas no solo como estrategias terapéuticas para lidiar con los profundos cambios corporales y emocionales que trae consigo el diagnóstico, sino también como estrategias políticas para incidir en la normalización y percepción social de la enfermedad como entidad crónica. La reescritura del cuerpo, consustancial al devenir crónico de la enfermedad, enfrenta a los autores a cuestionar la improductividad o incapacidad de los sujetos afectados por el VIH, y los límites entre el yo y el otro (virus); la salud y la enfermedad, todo ello en el contexto de la medicalización contemporánea de los cuerpos y las subjetividades.PALABRAS CLAVE: VIH/sida, representación, crónicas, enfermedad crónica, cuerpo, subjetividad.
ABSTRACT: Through the reading of the chronicles on HIV / AIDS by Marta Dillon and JoaquínHurtado, I analyze how these authors narrate the chronic coexistence with the HIV that imposes on them the learning of new ways of managing life and self-representation. I study the texts by Dillon and Hurtado not only as therapeutic strategies to deal with the impacts on bodies and emotions that the diagnosis brings but also as political strategies in order to change the social perception of the disease as a chronic condition. Through the rewriting of the body, inherent to the chronic evolution of the disease, the authors question the unproductivity or incapacity of the subjects affected by HIV and the limits between the self and the other (virus), health and illness, all in the context of the contemporary medicalization of bodies and subjectivities.KEY WORDS: HIV/AIDS, representation, chronic disease, chronicle, body, subjectivity.Mirta Suquet Martínez. "Marta Dillon y Joaquin Hurtado: Crónicas de la enfermedad crónica". Kamchatka. Revista de análisis cultural 10 (Diciembre 2017): 261-277.
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