In the U.S., the prevalence of blindness is expected to double by 2050 and as many half of those with blinding eye disease are unaware of their diagnosis. Screening for vision health in the community setting may offer a key strategy to address the rising trend avoidable vision loss. However, problems with excessive referrals and low compliance with these referrals (often <50%) undermine the effectiveness of vision screening programs. We investigated the outcomes of a modified vision screening program design. Key modifications were 1) incorporating an on-site ophthalmologist during screening events; and 2) leveraging community partner resources to maximizing benefit to participants. A review of screening outcomes of 4349 particpant examinations from the Casey Eye Institute Outreach Program (CEIO program) from 01/04/2012 to 10/3½016 were analyzed for demographics and disease findings. The burden on participants to comply with referrals was lessened as 97% of participants completed definitive exams. Clinical care was recommended for 924 (21.2%) participants. Nearly four out of five participants (78.8%) were provided care for all of their immediate vision health needs (full exams, refractions, and spectacle ordering). Modifications to vision screening program design may improve their effectiveness.
Purpose: To determine the frequency of Usher's syndrome and other ocular disease in students receiving special education services for the deaf in Oregon and to assess the amount of existing ophthalmologic surveillance of this population. A special emphasis was placed on screening for Usher's syndrome.
Methods: From 1980-1990, a prospective twocenter visual screening program of 231 deaf students in schools throughout Oregon was conducted using an ophthalmic questionnaire, complete eye examinations, and electroretinography. Students were between the ages of 10 and 21 years and participated on a volunteer basis. Findings for etiology and severity of visual loss and the scope of ophthalmologic surveillance within this population were analyzed.
Results: Two hundred seventeen of the 231 students examined received electroretinograms. Significant ocular pathology was found in 1 1 1 (48%) of the students. The most common diagnoses were congenital rubella (21%), significant uncorrected ametropia (16%), and ocular hypertension (9%). Five students were diagnosed with Usher's syndrome. Of the students with significant ocular pathology, only 37% were actively followed by an ophthalmologist.
Conclusion: Deaf students in Oregon's schools had a high frequency of eye disease. Early diagnosis and treatment of eye disease in this population could benefit the quality of life of these students. This study alerted the providers of special education services for the deaf and the ophthalmologic community in Oregon of the need for better eye care for these students.
Journal of Pediatric Ophthalmology and Strabismus 2001 ;38:1 1 -1 5.
Navigating access to eye care requires that patients recognize the need for screening and care, employ limited financial and social resources, manage complex health insurance policies, and access specialty clinical care. We investigated the experience of patients through the progression of vision loss to blindness, utilizing qualitative methods. We conducted structured telephone interviews with 28 persons with blindness throughout Oregon. Utilizing closed and open-ended questions, we explored patient experience on the events preceding avoidable blindness. Coding for emergent themes was conducted independently by two researchers using a constant comparative method. Participants described important barriers to accessing eye care: at the systems level, lack of access to providers and treatment; at the community level, available social support and services; and at the individual level, readiness to act and trust in providers. These findings suggest that important barriers to accessing preventive eye care, early diagnosis and treatment, vocational rehabilitation, and social services often occur at multiple levels. Access to eye care should be prioritized in efforts to reduce preventable visual impairment.
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