Involvement of a PPHCT is experienced as a substantial improvement of care by parents and HCPs. Coordination of palliative care during the last phase of life appears to be an important quality factor for the home care of dying children and their families.
Thirty-eight parent dyads participated (return rate 84%; 35% oncological disorders). According to parental report, dyspnea (61%) and pain (58%) were the dominant symptoms with an overall high symptom load (83%). Pain, agitation, and seizures could be treated more successfully than other symptoms. Successful symptom perception was achieved in most cases and predicted the quality of symptom treatment (R 2, 0.612). Concordant assessment of symptom severity between parents and healthcare professionals (HCPs) improved the satisfaction with the care provided (p = 0.037) as well as the parental quality-of-life (p = 0.041). Even in cases with unsuccessful symptom control, parents were very satisfied with the SHPPC team's care (median 10; numeric rating scale 0-10) and rated the child's death as highly peaceful (median 9). Significance of the results: The quality and the concordance of symptom perception between parents and HCPs essentially influence parental quality-of-life as well as parental satisfaction and constitute a predictive factor for the quality of symptom treatment and palliative care.
ZusammenfassungIn den letzten Jahren wurden viele Hilfsangebote und neue Strukturen zur Unterstützung von Palliativpatienten geschaffen. Auch in der Betreuung von schwerst und palliativ erkrankten Kindern und Jugendlichen werden viele, dem Alter der Patienten angepasste Angebote gemacht. Viele Familien suchen in diesen speziellen Situationen zusätzlich Unterstützung durch komplementäre Therapieverfahren. Hier kann die Homöopathie eine begleitende Therapie mit Hilfe der für den individuellen Patienten jeweils passenden homöopathischen Arznei anbieten, um die Krankheitssymptome des Kindes zu lindern und seine Lebensqualität zu verbessern. Die Grundzüge der Homöopathie werden dargestellt und die praktische homöopathische Betreuung und Begleitung bei 2 Kindern mit schweren angeborenen Erkrankungen wird geschildert.
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