Introduction: Retinoblastoma is a cancerous tumor of the retina. It is a rare pathology that affects each year, in France, one child out of 15,000 to 20,000 births. In Morocco, and in a prospective study conducted over 2 years and 3 months in the pediatric ophthalmology department in Casablanca, the annual incidence of retinoblastoma was estimated at 18 cases per year. The diagnosis of cancer, like any other serious illness, provokes an intense feeling of guilt in the child and in his parents. The retinoblastoma diagnosis announcement remains a difficult and delicate moment for caregivers and parents. The purpose of our work is to describe the experience of the parents of a child with retinoblastoma and to assess the degree of satisfaction of these children both for the treatment of their child and for clarity. information transmitted. Material and method: We conducted a descriptive cross-sectional study of the parents of children with retinoblastoma who received care in the ophthalmology department of Mohammed VI CHU Marrakech Morocco, and this over a period of one year from March 2016 to March 2017. The data is collected from parents with a questionnaire aimed to assess the parents' feelings and experiences around the following areas: the announcement structure, the climate of trust, proposal of formalizing personalized support. Results: The average age of children at the time of diagnosis is 11 months, with a male predominance, sex ratio is 1.4. All families had one sick child. Retinoblastoma was bilateral in two cases. The surgical treatment was radical in all cases. 75% felt that the doctor was able to find the right words to announce the disease, and 42% felt he found the right words. At the time of diagnosis, 11 out of 12 families felt that they had received sufficient listening from the healthcare professionals and 75% felt that listening was quite sufficient. All parents report that the doctor who made the announcement spoke to them with care and respect and 92% spoke on the extreme positive score. 66% of families report receiving a personalized care plan. Conclusion: The results of this study will improve the overall care provided to children and integrate the difficulties expressed and felt by parents to the care project.
Background: Cystic echinococcosis, also known as hydatid disease, which is mostly caused by larval stage of Echinococcusgranulosus. The orbital localization in rare and uncommon. Preoperative diagnosis is important to prevent from complications. Case information: Here we report the case of a child admitted for chronic proptosis whose investigations concluded with an orbital hydatid cyst. Result: We describe the case of an 8-year-old child, who consulted in our ophthalmic emergency department for a painful proptosis of the right eye with a progressive decrease in visual acuity and chronic fatigue that had been evolving for 6 months. Due to this highly evocative lesion of an orbital hydatid cyst, we carried out with an ELISA and Western Blot hydatid serology which ended negative. Faced with this orbital involvement, we performed an orbital MRI which objectified two right T2-hypersignal eye cystic lesions, well-limited, exerting a mass effect on the optic nerve and responsible of a grade 2 exophthalmos. We also performed a biological assessment including hemogram, renal and hepatic function that had been normal. The patient remained under medical treatment with albendazole before and after surgery. Conclusion: Orbital involvement, although rare, should not be ignored especially when it comes to chronic proptosis with or without a visual impact in children living around dogs or breeders or in deplorable hygienic conditions.
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.
customersupport@researchsolutions.com
10624 S. Eastern Ave., Ste. A-614
Henderson, NV 89052, USA
This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.
Copyright © 2024 scite LLC. All rights reserved.
Made with 💙 for researchers
Part of the Research Solutions Family.