Relations between parent attitudes, intrinsic value of science, peer support, available activities, and preference for future science careers were examined for science-talented, rural, adolescent females. Two hundred and twenty 9th-12th-grade girls and their mothers responded to questionnaires about science courses, plans for future courses and college majors, perceptions of the girls’ abilities in science, and numerous supports and deterrents for continued interest in science areas. Current intrinsic interest in science was most strongly related to preferring a science career, but previous experiences with science (measured by grade in school, science GPA, friends’ support for science, and extracurricular science activities) and socializers’ attitudes (measured by mothers’ perceptions of the value of science for women and of their daughters’ abilities) were also related. The discussion highlights the importance of providing activities and other supports to maintain girls’ interests in science in a rural environment.

Implementing a standardized tool assessing adherence barriers in the JIA population across multiple clinical settings is feasible. Systematic screening sheds light on the factors that make adherence difficult in JIA and identifies targets for future adherence interventions in clinical practice.

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BackgroundRandomized trials have demonstrated the efficacy of patient decision aids to facilitate shared decision making in clinical situations with multiple medically reasonable options for treatment. However, little is known about how best to implement these tools into routine clinical practice. In addition, reliable implementation of decision aids has been elusive and spread within pediatrics has been slow. We sought to develop and reliably implement a decision aid for treatment of children with juvenile idiopathic arthritis.MethodsTo design our decision aid, we partnered with patient, parent, and clinician stakeholders from the Pediatric Rheumatology Care and Outcomes Improvement Network. Six sites volunteered to use quality improvement methods to implement the decision aid. Four of these sites collected parent surveys following visits to assess outcomes. Parents reported on clinician use of the decision aid and the amount of shared decision making and uncertainty they experienced. We used chi-square tests to compare eligible visits with and without use of the decision aid on the experience of shared decision making and uncertainty.ResultsAfter 18 rounds of testing and revision, stakeholders approved the decision aid design for regular use. Qualitative feedback from end-users was positive. During the implementation project, the decision aid was used in 35% of visits where starting or switching medication was discussed. Clinicians used the decision aid as intended in 68% of these visits. The vast majority of parents reported high levels of shared decision making following visits with (64/76 = 84%) and without (80/95 = 84%) use of the decision aid (p = 1). Similarly, the vast majority of parents reported no uncertainty following visits with (74/76 = 97%) and without (91/95 = 96%) use of the decision aid (p = 0.58).ConclusionsAlthough user acceptability of the decision aid was high, reliable implementation in routine clinical care proved challenging. Our parsimonious approach to outcome assessment failed to detect a difference between visits with and without use of our aid. Innovative approaches are needed to facilitate use of decision aids and the assessment of outcomes.

Background/Purpose: Pediatric Rheumatology Care and Outcomes Improvement Network (PR‐COIN) is a multi‐site learning network designed to improve outcomes of juvenile idiopathic arthritis (JIA) care. Teams collect point of care data on measures of process of care and outcomes of care for the purposes of analysis to guide improvement activities. Eleven North American pediatric rheumatology centers participate. This report illustrates our improvement in several JIA process quality measures (QMs). Methods: Process of care QMs targeted for improvement include measurement of: arthritis‐related pain, physician global assessment, joint count, health‐related quality of life, physical function, as well as screening for uveitis, medication toxicity, and tuberculosis per guidelines. Outcome measures for JIA include clinical inactive disease, clinical remission on and off medications, no or mild pain level, and optimal physical functioning. Network goals were determined for each process and outcome measure. Data are collected with IRB approval and informed consent, and the shared registry for data entry is the ACR's Rheumatology Clinical Registry. Site‐specific and aggregate data are analyzed and displayed monthly via statistical process control charts allowing PR‐COIN to track performance over time. Individual centers use established quality improvement methodology to reach and exceed pre‐determined goals. Results: Data from 5112 encounters for 1134 JIA patients have been collected since April 2011. QMs with performance meeting or exceeding initial goals include documentation of complete joint count and measurement of arthritis‐related pain. For PR‐COIN network as a collective unit, QMs improved in six processes—measurement of functional ability, completion of ongoing medication toxicity labs, documentation of complete joint count, medication counseling for newly prescribed DMARDs, documentation of annual medication counseling, and measurement of health‐related quality of life. All of these measures had a shift above the baseline mean, demonstrating special cause. In addition, five sites have demonstrated individual improvement in at least one process QM. Conclusion: PR‐COIN sites are collectively and individually demonstrating significant improvements in JIA process of care QMs. Quality improvement efforts in PR‐COIN are ongoing with the goal of improving the outcome for patients with JIA.