Background Friendship is a crucial relationship offering practical support, enjoyment and improved health. When disability is added into the mix, the permutations of friendship shift. Despite the presence of inclusive social policies many disabled teens continue to experience stigma and social isolation, yet some teens are able to establish long‐term friendships. Methods A nuanced understanding about how disabled teens navigate stigma to create lasting friendships was constructed through this qualitative study. Seven boys and seven girls between the ages 15 to 20 years who experienced disability engaged in research interviews and participant observation sessions. Nine adults were also interviewed. A critical approach to data analysis was complimented by coding in Atlas.ti. Results This article describes the strategies used by these disabled teens to make and keep friends: disrupting norms about friendship, coming out as disabled, connecting through stigma and choosing self‐exclusion. Conclusion Disabled teens in this study felt a greater sense of belonging when with peers who shared the disability experience, thus self‐exclusion was a viable strategy for creating sustainable friendships in the context of oppression. Social policy informed by the experiences of disabled youth in the current study will more effectively promote social inclusion by first acknowledging and then disrupting ableism.
Bladder dysfunction imposes major disruptions on daily life. People with MS attempt to self-manage their bladder symptoms, despite current barriers to navigating existing healthcare infrastructure. Understanding these barriers and the individual strategies employed by people with MS are the first steps in facilitating independent management of bladder dysfunction. Implications for Rehabilitation Each individual's experience of bladder dysfunction is unique. Healthcare professionals must be prepared to discuss all disruptions and losses associated with bladder dysfunction for people with MS. People with MS have a vast range of knowledge in relation to their own bladder symptoms and healthcare professionals need to explore their existing self-management strategies during assessment. People with MS and healthcare professionals need to be educated on the wider health implications relating to bladder dysfunction.
Accessible Summary The Inclusive Research Network (IRN) is a group of researchers who do projects that matter to people with intellectual disabilities in Ireland. This paper is about a project we did to learn what it is like for people with intellectual disabilities in Ireland to move from one house to another. We talked to 35 people who moved house. Some people chose where to move but others had no choice. Feeling safe made them happier in their new home. One third of the people we spoke to had no choice about where they live and who they live with. Having these choices is their right under the United Nations Convention on the Rights of Persons with Disabilities. People with intellectual disabilities need supporters who listen and respect them. Abstract BackgroundSupporting people with intellectual disabilities to live well in communities they choose is deinstitutionalisation's central aim and endorsed by the United Nations Convention on the Rights of Persons with Disabilities (CRPD) (UN, 2006). This study focused on the experiences of people with intellectual disabilities in Ireland when moving home using an inclusive research approach. MethodThis inclusive research project employed a qualitative approach. Participants included 19 men and 16 women (total n = 35) with ages ranging from 22 to 77 years. Structured interviews attended to the experience of moving home and the supports accessed during and after the transition to community living. ResultsThematic analysis yielded four themes: “expressing choice” in the moving process; “feeling connected or isolated when moving”; “accessing supports during and after the move”; and finally, participants' reflections on “experiencing vulnerability and feeling safe” while resettling. ConclusionsThis is the first study about people with intellectual disabilities moving home to be collaboratively designed and completed by an inclusive research team. Although much is understood about the long‐term benefits of engaging in meaningful choices about housing and supports, concerns remain about the extent to which the will and preferences of people with intellectual disabilities in Ireland are respected when moving home.
Introduction: While disclosure of concealable conditions like epilepsy can create social support, it may cause relationships to disintegrate. Friendship in young adulthood is pivotal in the transition to emotional autonomy, yet little is known about peer disclosure by university students with epilepsy. This qualitative study aimed to map key features in the process of epilepsy disclosure. Method: Semi-structured interviews were completed with eight young adults (aged 18-25 years) with epilepsy enrolled in or recently graduated from Irish universities. Findings: Thematic analysis yielded four main themes: (1) Assessing the disclosure recipient; (2) Managing the presentation of epilepsy; (3) Forging alliances; and (4) Feeling more positive. The process of disclosure centred on enlisting the support of allies deemed trustworthy by participants. Disclosure messages presented epilepsy neutrally to bolster allies' commitment to the role. Although participants viewed disclosure as beneficial to wellbeing, concern was expressed about acquiring a stigmatised social identity. Conclusion: Occupational therapists are well placed to support young adults through the process of disclosure. Promoting a positive collective identity through peer mentorship promises to disrupt stigma. More broadly, partnerships between occupational therapists and epilepsy organisations or disability support services in third level education could establish an academic culture where supports are readily available to people with concealable illnesses.
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