Few studies in HCI4D have examined the lived experiences of women with pregnancy complications. We conducted a qualitative study with 15 pregnant women to gain an in-depth understanding of the context in which pregnancy takes place and everyday experiences living with complications in rural North-West India. To complement our interviews, we conducted six focus groups with three pregnant women, three community health workers and three members of an NGO. Our study reveals insights about the challenges and experiences of the pregnant women with complications while navigating the physical, spatial, social and emotional aspects of antenatal care as part of complex and contradictory structures and settings of their everyday life. We argue that the design of digital health in support of pregnancy care for the Global South must center around supporting the navigational work done by the pregnant women and their families.We summarize research in two areas including an overview of public health strategies and challenges to improve maternal health in India, and digital health in the Global South, with focus on the Indian context.
The healthcare sector is undergoing large changes in which technology is given a more active role in both in-clinic and out-of-clinic care. Authoritative healthcare models such as compliance and adherence which relies on asymmetric patient-doctor relationships are being challenged as society, patient roles and care contexts transforms, for example when care activities move into non-clinical contexts.Concordance is an alternative model proposed by the medical field that favours an equal and collaborative patient-doctor relationship in the negotiation of care. Similarly, HCI researchers have applied diverse models of engagement in IT design ranging from authoritative models (e.g. perceiving people as human factors to design for) to more democratic design processes (e.g. Participatory Design). IT design has also been crafted as on-going processes that are integrated parts of everyday use. Based on the best practice of participation from the medical and the HCI fields, we identify critical alternatives for healthcare design. These alternatives highlight opportunities with ongoing design processes in which the design of care regimens and care IT are perceived as one process.
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