Background: As a non–European Union member state, Albania is increasingly orienting itself on Western models regarding human rights, patient rights, and legal regulations for healthcare. Due to its limited fiscal and legal power, enforcing legal and ethical regulations poses a major problem. Aim: The aim of this study is to investigate nurse’s knowledge and experiences regarding ethical and legal issues in Albanian elder care in state-funded and privately run institutions. Research design: The study was conducted using an inductive and qualitative design, utilizing a focused ethnographic approach, based on Roper and Shapira’s framework. Method: Data were collected between June 2017 and September 2018 using participant observation, field notes, and semi-structured interviews with 15 nurses in seven different elder care institutions. In total, 100 h of observation and 15 interviews were performed. Data analysis was based on Mayring’s qualitative content analysis. Ethical consideration: The approval for the study was obtained from UMIT—The Health and Life Sciences University, Austria. Findings: The findings of the study fell into the following main categories: “Everyday care issues,” “End-of-life issues,” “Legal issues,” and “Ethical-legal education and conflicts.” Discussion: The participants reported many ethical and legal issues when describing their everyday challenges and displayed a strong lack of ethical and legal education. Despite a wide spectrum in the quality of care between private and state-funded nursing homes, older people mostly do not know their own diagnosis. Conclusion: This study indicates that further ethical and legal education is needed. Furthermore, nurses need to be better prepared for ethical conflicts with families, as strengthening patient rights could come into conflict with traditional rights of the Albanian family.
BackgroundThe coronavirus disease (COVID-19) is now a worldwide public health emergency. As essential and central parts of the COVID-19 patient care team, nurses and nurse assistants are facing all kinds of challenges caused by the disease and the pandemic. Understanding these challenges and the way nurses and nurse assistants handle and cope with them provides important knowledge on how to improve management of future pandemics and endemic situations. Thus, the present study explored the challenges faced by nurses and nurse asssitants who cared for COVID-19 patients in hospitals and long term care facilities in Italy, Austria and Germany.MethodsThe study employed a qualitative design. Purposive sampling was used to select the participants consisting on nurses (n = 30), nurse coordinators (n = 6) and nurse assistants (n = 5) from hospitals (n = 32) and long-term care facilities (n = 9) in Austria, Germany, and Italy. Data were collected between August and December 2020 through semi-structured interviews. The collected data were analyzed using qualitative content analysis.ResultsThe analysis of the data revealed three main themes with twelve sub-categories: (i) Knowledge, skills, and training (lack of knowledge; skills; organizational issues; training); (ii) resources and risk (lack of protective equipment; difficulties with protective equipment; risk and infection; feelings and isolation); (iii) coping strategies (humor; adaption; team effort; self-care; family and friends).ConclusionNurses and nurse assistants who participated in this study faced many personal and professional challenges, and used different coping strategies to manage the situation. Some of these strategies can be applied to reduce these challenges and create better working conditions for nurses and nurse assistants in similar events. Further research, training of staff, and adaptation of institutional policies may help develop new strategies to face future pandemics successfully.
BACKGROUND: Maintaining patients’ autonomy and including them in the decision-making process is crucial in eldercare. This study explores the cultural impact of independence in Albanian nursing homes. This paper follows previous publications from the same project. AIM: Based on the previous research on ethical and legal issues, the aim was to identify how and why autonomy is frequently compromised. METHODS: An exploratory qualitative study with semi-structured interviews and field notes was conducted. The field notes and interviews were analyzed using inductive category formation following a qualitative content analysis approach to identify potential causes and core themes. For this study, 15 nurses from three public nursing homes, two private nursing homes, one palliative care center, and one daily care center in Albania were included in the study. The observations and interviews were conducted between June and August 2018 in 7 eldercare institutions. RESULTS: The study shows that autonomy is frequently compromised in this setting. Although residents have some freedom concerning movement, nutrition, and hygiene, they are mainly excluded from the decision-making process in treatment or palliative care. Patients are purposely misinformed about their diagnosis so that they live life “normally until the last day.” Here, a robust cultural aversion to talking about death comes together with a firm reliance on the family’s decision-making. CONCLUSION: The study indicates that strengthening patients’ rights by improving nurses’ education can lead to more severe family conflicts. Expanding patient rights can be perceived as limiting the rights of the family. This demonstrates the difficulty of imposing “western” health regulations in different cultural contexts. In addition to legal and ethical education, preparing nurses for conflicts with the residents’ families and creating awareness for fundamental patient rights among their relatives are critical steps to improve patients’ autonomy in Albania.
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