This paper focuses on how particularities are performed and made to travel through the creation of trust. The Swedish Species Observation System (Artportalen) is one of the largest inscription and calculation centers for citizen data in the world, used extensively by public authorities in Sweden. Observations by members of the public become actionable through environmental governance laws in Sweden. These observations are made through networks of things and humans in which trust is created but unevenly distributed. Important for them to be trusted and to travel are such things as computer software to filter and map observations, red lists, GIS-tools to determine time and place, and validation committees. However, trust is more concentrated in a core set of actors, and there depends on interpersonal relations – though these relations are facilitated by other parts of the epistemic system.
This article investigates user roles in virtual citizen science projects through a case study of the Talkforum of Shakespeare's World, a humanities project on the Zooniverse platform. To address collective knowledge production, we study the use of hashtags, pinging, and linking as a way of differentiating how researchers, moderators, and different user groups use the forum according to their roles. We show how both volunteers and researchers have a much deeper interest in the texts that they transcribe and actively seek contextual information, shape new lines of inquiry, and discover new phenomena. We conclude that the use of online forums in citizen science can play a crucial role for extending the knowledge production from academic research to a wider public interest, and also provide new knowledges beyond the assigned task of transcribing documents.
The assessment of craniofacial deformities requires patient data which is sparsely available. Statistical shape models provide realistic and synthetic data enabling comparisons of existing methods on a common dataset.We build the first publicly available statistical 3D head model of craniosynostosis patients and the first model focusing on infants younger than 1.5 years. For correspondence establishment, we test and evaluate four template morphing approaches. We further present an original, shape-modelbased classification approach for craniosynostosis on photogrammetric surface scans. To the best of our knowledge, our study uses the largest dataset of craniosynostosis patients in a classification study for craniosynostosis and statistical shape modeling to date.We demonstrate that our shape model performs similar to other statistical shape models of the human head. Craniosynostosis-specific pathologies are represented in the first eigenmodes of the model. Regarding the automatic classification of craniosynostis, our classification approach yields an accuracy of 97.3 %, comparable to other state-of-the-art methods using both computed tomography scans and stereophotogrammetry.Our publicly available, craniosynostosis-specific statistical shape model enables the assessment of craniosynostosis on realistic and synthetic data. We further present a state-of-the-art shape-modelbased classification approach for a radiation-free diagnosis of craniosynostosis.
In this article, the importance of flexibility in clinical practice is discussed, and the incorporation of literature is taken as an example of such flexibility. Literature might for example provide opportunities for reflecting on emotions, relationships, and possible future selves. We present the work of 2 clinicians who used literature in their clinical practice, an approach that in these cases became fundamental for successful treatment. In the first case, the client introduced literature as an important topic and the clinician responded to the client's need to discuss literature. In the second case, the clinician reflected on literature she had read herself. She thus understood the client and could establish a genuine therapeutic dialogue. Both cases show how flexible incorporation of literature and other modes of artistic expression can provide an opening space for therapeutic dialogue, and opportunities for reflection. Clinical practice is however currently focused on diagnoses and structured interventions. Therefore, the possibility to approach clients in a flexible manner needs to be acknowledged and supported.
The concept of boundary work (Gieryn 1983, 1999) has been developed to capture theways in which scientists collectively defend and demarcate their intellectual territories.This article applies the concept of boundary work to the ethical realm and investigates theethical boundary work performed by researchers in the field of citizen science (CS) througha literature review and by analysing accounts of ethics presented in CS literature.Results show that ethical boundary work in the CS literature is, to a large extent, a matterof managing ambiguities and paradoxes without any clear boundaries drawn between theunethical and ethical. Scientists are negotiating ethical positions, which might, occasionally,enhance the ethical authority of ‘non-science’ and non-scientists, as well as maintainalready established research ethics. The main ethical boundary work in CS displaysvariations towards perceived insufficiencies of conventional research ethics to accommodate“outsiders”, addressing issues of distribution, relevance, and expulsion as science includevolunteer contributors in the scientific process.
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