Epidermolysis bullosa (EB) is an inherited disorder characterized by skin blistering from minor trauma. The four classic subtypes are EB simplex, junctional EB, dystrophic EB, and Kindler syndrome. 1 Approximately 500 000 individuals worldwide have EB, 2,3 and all forms are associated with scarring and require a daily wound care regiment: inspection, blister drainage, debridement, ointment application, and dressing changes. [4][5][6][7][8] Patients report experiencing difficulties with performing activities of daily living. 9 Studies have revealed reduced life satisfaction and more caregiver burden among patients with EB. 10 An earlier questionnaire identified psychiatric symptoms in 20 of 25 EB patients. 3 Some previously documented patient concerns include lack of understanding from others and feelings of being different. 11 Patients with EB are similar to patients with other chronic conditions in needing support