Objective-Investigate the challenges experienced by survivors of critical illness and their caregivers across the transitions of care from intensive care to community, and the potential problem-solving strategies used to navigate these challenges.Design-Qualitative design -data generation via interviews and data analysis via the Framework Analysis method.Setting-Patients and caregivers from three continents, identified through the Society of Critical Care Medicine's THRIVE international collaborative sites (follow-up clinics and peer support groups).
Subjects-Patients and caregivers following critical illness.
Interventions-NilMeasurements and Main Results-From 86 interviews (66 patients, 20 caregivers), we identified the following major themes: 1. Challenges for patients -Interacting with the health system and gaps in care; Managing others' expectations of illness and recovery; 2. Challenges for caregivers -Health system shortfalls and inadequate communication; and Lack of support for caregivers. 3. Patient and caregiver-driven problem solving across the transitions of care -Personal attributes, resources, and initiative; Receiving support and helping others; and Acceptance.Conclusions-Survivors and caregivers experienced a range of challenges across the transitions of care. There were distinct and contrasting themes related to the caregiver experience. Survivors and caregivers used comparable problem-solving strategies to navigate the challenges encountered across the transitions of care.Haines et al.
Objective
To explore patient experiences of, and preferences for, physical activity after a lung cancer diagnosis.
Methods
This was a qualitative study involving seven patients who had been treated for lung cancer within the previous 2 years. Participants attended a focus group interview. Conventional content analysis methodology was used to analyse the text by two independent researchers.
Results
Eight major themes emerged from the data. These were as follows: the influence of past lifestyle and chronic disease; the perceived benefits of physical activity; using physical activity to facilitate return to activities of daily living; the impact of symptoms, capacity and motivation; family and peer support; access to services; health professionals; and enjoyment of different types of physical activity. Patients suggested several factors that could improve their healthcare experience. These include access to exercise professionals particularly after cancer treatment; access to information about physical activity in different formats; supervision from health professionals and peer support; and use of behaviour change strategies to achieve sustainable increases in physical activity.
Conclusion
Our results should be considered in the improvement of lung cancer care pathways as we strive to implement physical activity services into routine clinical care.
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