244 Background: Young women with metastatic breast cancer (MBC) are an underserved population, rendering them susceptible to media sources that lack in credibility and reliability. YouTube (YT) is the most commonly used search engine following Google. This study aims to assess the quality of MBC YT videos and to identify common themes in MBC experiences. Methods: A systematic review of YT videos with search terms “metastatic breast cancer young” was conducted in 08/2021. Title, date uploaded, length, poster identity, number of likes, dislikes, and comments were collected. Understandability, actionability were assessed using the Patient Education Materials Assessment Tool (PEMAT) for audiovisual (A/V) materials; information reliability/quality was assessed with DISCERN. Scoring was done by 3 reviewers. Themes, presence of sponsorships, healthcare professionals’ and patients’ narratives were also reported. Results: 101 videos were identified. Of these, 78.2% were sponsored. Average video length was 14.9 minutes (SD 22.5). Majority were posted by nonprofit groups and breast cancer advocacy organizations. Mean PEMAT A/V score was 78.8% (SD 15.3) and 43.1% (SD 45.2) for understandability and actionability, respectively. Overall, videos had moderate reliability and quality levels; mean DISCERN score was 2.44/5 (SD 0.7). Patient narratives were shared in 63.3% and healthcare professionals in 57.4%. Identified themes include treatment (66.3%), family relationship (45.5%), motherhood (37.6%), terminal status (31.6%), the path to diagnosis (28.7%), and spousal relationship (24.7%). Conclusions: YouTube videos about MBC are highly understandable but demonstrate low to moderate rates of actionability, with low reliability and quality scores. Many have a potential commercial bias. More research is needed to evaluate their impact on patient decisions and possible interventions provided by healthcare institutions.[Table: see text]

Background Patients increasingly use web-based evaluation tools to assess their physicians, health care teams, and overall medical experience. Objective This study aimed to evaluate the extent to which the standardized physician competencies of the CanMEDS Framework are present in web-based patient reviews (WPRs) and to identify patients’ perception of important physician qualities in the context of quality cancer care. Methods The WPRs of all university-affiliated medical oncologists in midsized cities with medical schools in the province of Ontario (Canada) were collected. Two reviewers (1 communication studies researcher and 1 health care professional) independently assessed the WPRs according to the CanMEDS Framework and identified common themes. Comment scores were then evaluated to identify κ agreement rates between the reviewers, and a descriptive quantitative analysis of the cohort was completed. Following the quantitative analysis, an inductive thematic analysis was performed. Results This study identified 49 actively practicing university-affiliated medical oncologists in midsized urban areas in Ontario. A total of 473 WPRs reviewing these 49 physicians were identified. Among the CanMEDS competencies, those defining the roles of medical experts, communicators, and professionals were the most prevalent (303/473, 64%; 182/473, 38%; and 129/473, 27%, respectively). Common themes in WPRs include medical skill and knowledge, interpersonal skills, and answering questions (from the patient to the physician). Detailed WPRs tend to include the following elements: experience and connection; discussion and evaluation of the physician’s knowledge, professionalism, interpersonal skills, and punctuality; in positive reviews, the expression of feelings of gratitude and a recommendation; and in negative reviews, discouragement from seeking the physician’s care. Patients’ perception of medical skills is less specific than their perception of interpersonal qualities, although medical skills are the most commented-on element of care in WPRs. Patients’ perception of interpersonal skills (listening, compassion, and overall caring demeanor) and other experiential phenomena, such as feeling rushed during appointments, is often specific and detailed. Details about a physician’s interpersonal skills or “bedside manner” are highly perceived, valued, and shareable in an WPR context. A small number of WPRs reflected a distinction between the value of medical skills and that of interpersonal skills. The authors of these WPRs claimed that for them, a physician’s medical skills and competence are more important than their interpersonal skills. Conclusions CanMEDS roles and competencies that are explicitly patient facing (ie, those directly experienced by patients in their interactions with physicians and through the care that physicians provide) are the most likely to be present and reported on in WPRs. The findings demonstrate the opportunity to learn from WPRs, not simply to discern physicians’ popularity but to grasp what patients may expect from their physicians. In this context, WPRs can represent a method for the measurement and assessment of patient-facing physician competency.

Drawing from feminist and queer technoscience studies, this panel examines the constitutive entanglements of bodies, technologies and systems in Type 1 diabetic continuous glucose monitoring and the intimate feeling of their numbers and data visualization; in the selfie politics of mastectomies on Instagram and the platform vernaculars people use to make the grief of breast cancer’s gendered loss representable; in the ways Bay Area Deaf AIDS activists in the 1980s and 1990s remediated their access to information through infrastructures of care they built for themselves and others; and in the ways Type 1 diabetics navigate the material culture of insulin pump treatment and the politics of diabetic care as both compulsory and liberating. Thinking across their research on chronic and crip technologies, this panel interrogates what it means, and is, to care for oneself and others in relation to the feel of navigating technologized, datafied, and materially marked lives and the systems and communities that shape their very possibilities. Building on Hamraie and Fritsch’s (2019) conception of “crip technoscience” and capacious notions of care articulated by folks in our research, panelists examine how chronic and disabled lives are lived between “enclosed regimes of self-care” with their individualizing models of selfhood and “collective communal care” frameworks (Sharma, 2017, para. 20, para. 4) that our research shows often require new ways of thinking about and better sourcing social and technological infrastructures that are centered around chronic and crip ways of living.

BACKGROUND Patients increasingly use web-based evaluation tools to assess their physicians, health care teams, and overall medical experience. OBJECTIVE This study aimed to evaluate the extent to which the standardized physician competencies of the CanMEDS Framework are present in web-based patient reviews (WPRs) and to identify patients’ perception of important physician qualities in the context of quality cancer care. METHODS The WPRs of all university-affiliated medical oncologists in midsized cities with medical schools in the province of Ontario (Canada) were collected. Two reviewers (1 communication studies researcher and 1 health care professional) independently assessed the WPRs according to the CanMEDS Framework and identified common themes. Comment scores were then evaluated to identify κ agreement rates between the reviewers, and a descriptive quantitative analysis of the cohort was completed. Following the quantitative analysis, an inductive thematic analysis was performed. RESULTS This study identified 49 actively practicing university-affiliated medical oncologists in midsized urban areas in Ontario. A total of 473 WPRs reviewing these 49 physicians were identified. Among the CanMEDS competencies, those defining the roles of medical experts, communicators, and professionals were the most prevalent (303/473, 64%; 182/473, 38%; and 129/473, 27%, respectively). Common themes in WPRs include medical skill and knowledge, interpersonal skills, and answering questions (from the patient to the physician). Detailed WPRs tend to include the following elements: experience and connection; discussion and evaluation of the physician’s knowledge, professionalism, interpersonal skills, and punctuality; in positive reviews, the expression of feelings of gratitude and a recommendation; and in negative reviews, discouragement from seeking the physician’s care. Patients’ perception of medical skills is less specific than their perception of interpersonal qualities, although medical skills are the most commented-on element of care in WPRs. Patients’ perception of interpersonal skills (listening, compassion, and overall caring demeanor) and other experiential phenomena, such as feeling rushed during appointments, is often specific and detailed. Details about a physician’s interpersonal skills or “bedside manner” are highly perceived, valued, and shareable in an WPR context. A small number of WPRs reflected a distinction between the value of medical skills and that of interpersonal skills. The authors of these WPRs claimed that for them, a physician’s medical skills and competence are more important than their interpersonal skills. CONCLUSIONS CanMEDS roles and competencies that are explicitly patient facing (ie, those directly experienced by patients in their interactions with physicians and through the care that physicians provide) are the most likely to be present and reported on in WPRs. The findings demonstrate the opportunity to learn from WPRs, not simply to discern physicians’ popularity but to grasp what patients may expect from their physicians. In this context, WPRs can represent a method for the measurement and assessment of patient-facing physician competency.

BACKGROUND Young women with metastatic breast cancer (YWMBC) are part of a digitally connected generation yet are underserved in terms of information needs. YouTube (YT) is the most commonly used search engine following Google. The accessibility of health-related content on social media, paired with the rare and marginalized experience of YWMBC, as well as the digital media practices of younger generations, implies a considerable likelihood that YWMBC will seek information and community online. OBJECTIVE This study aims to assess the quality of MBC YT videos and to identify themes in YWMBC experiences. METHODS A systematic review of MBC YT videos was conducted in 08/2021. Understandability, actionability were assessed using the Patient Education Materials Assessment Tool (PEMAT); information reliability/quality was assessed with DISCERN. Themes, sponsorships, healthcare professionals’ and patients’ narratives were reported. RESULTS A total of 101 videos were identified. Of these, 78.2% included sponsorships. Mean PEMAT score was 78.8% (SD 15.3) and 43.1% (SD 45.2) for understandability and actionability, respectively. Mean DISCERN score was 2.44/5 (SD 0.7). Identified themes include treatment (66.3%), family relationship (45.5%), motherhood (37.6%). CONCLUSIONS YT videos about YWMBC are highly understandable but demonstrate moderate rates of actionability, with low reliability and quality scores. Many have a commercial bias. While online materials have limitations, their potential to provide patient support is not fully developed. By acknowledging their patients’ media habits, physicians can 1) further develop a trusting bond with their patients, 2) provide a space for open and honest discussions of online materials, and 3) avoid any potential instances of confusion caused by misleading, inaccurate, or false online materials.