Sebagian besar pasien strok yang kembali ke rumah mengalami kecacatan. Kecacatan akibat strok tidak hanya berdampak bagi pasien, akan tetapi juga berdampak bagi anggota keluarga yang akan menjadi caregiver. Penelitian pada caregiverini penting karena caregiverberperan terhadap keberhasilan pengobatan dan perawatan pasien strok. Penelitian ini bertujuan untuk mengeksplorasi secara mendalam tentang makna pengalaman keluarga sebagai caregiverpasien strok di rumah. Penelitian ini merupakan studi fenomenologi deskriptif. Pengumpulan data dilakukan dengan indepth interview. Partisipan dalam penelitian ini berjumlah 16 orang yang dipilih dengan teknik purpossive sampling. Data yang diperoleh dianalisis dengan pendekatan Colaizzi. Hasil analisis penelitian ditemukan lima tema yaitu: memberikan dukungan total, memenuhi kebutuhan dasar, penderitaan dan hikmah bagi caregiver, kurangnya keterampilan dalam merawat, dan keterbatasan caregiver. Caregivermenderita masalah fisik, psikologis, dan sosial. Pada umumnya, caregivermerasa terabaikan, mereka membutuhkan informasi terkait penyakit pasien, cara merawat pasien strok, dan sumber-sumber komunitas pelayanan kesehatan. Berdasarkan hasil penelitian, perawat disarankan untuk melakukan perencanaan pulang individual yang lebih berpusat pada keluarga daripada pendekatan berpusat pada pasien.Kata kunci: Caregiverkeluarga, merawat, pasien strok AbstractMost of the strok patients who return home suffer from disabilities. Disability caused by strok not only impact on strok patients, but also impact on family members who will be the caregiver. The concern to the caregiver is important because the success of the treatment and care of strok patients can not be separated from the help and support provided by the caregiver. This study aims to explore deeply the meaning of family experience as caregiver for strok patients at home. This study is a descriptive phenomenological study. Data were collected through in-depth interview. Participants in this study were 16 people who were selected by purposive sampling technique. The data obtained were analyzed by using Colaizzi approach. Results of analysis found 5 (five) themes, namely: giving total support, meeting basic needs, suffering and wisdom for the caregiver, lack of skills in caring for, and limitations of caregiver. Caregiver suffering from physical, psychological, and social problems. In general, caregivers feel neglected, they need information about the patient's illness and how to care for them as well as community resources for health services. Based on the results of the research, it is suggested that discharge planning approach should be focused more on family rather than patient.Key words:Family caregiver, caring, strok patient
AbstrakSebagian besar pasien strok yang kembali ke rumah mengalami kecacatan. Kecacatan akibat strok tidak hanya berdampak bagi pasien, akan tetapi juga berdampak bagi anggota keluarga yang akan menjadi caregiver. Penelitian pada caregiver ini penting karena caregiver berperan terhadap keberhasilan pengobatan dan perawatan pasien strok. Penelitian ini bertujuan untuk mengeksplorasi secara mendalam tentang makna pengalaman keluarga sebagai caregiver pasien strok di rumah. Penelitian ini merupakan studi fenomenologi deskriptif. Pengumpulan data dilakukan dengan indepth interview. Partisipan dalam penelitian ini berjumlah 16 orang yang dipilih dengan teknik purpossive sampling. Data yang diperoleh dianalisis dengan pendekatan Colaizzi. Hasil analisis penelitian ditemukan lima tema yaitu: memberikan dukungan total, memenuhi kebutuhan dasar, penderitaan dan hikmah bagi caregiver, kurangnya keterampilan dalam merawat, dan keterbatasan caregiver. Caregiver menderita masalah fisik, psikologis, dan sosial. Pada umumnya, caregiver merasa terabaikan, mereka membutuhkan informasi terkait penyakit pasien, cara merawat pasien strok, dan sumber-sumber komunitas pelayanan kesehatan. Berdasarkan hasil penelitian, perawat disarankan untuk melakukan perencanaan pulang individual yang lebih berpusat pada keluarga daripada pendekatan berpusat pada pasien.Kata kunci: Caregiver keluarga, merawat, pasien strok. The Live Experience of Caregiver Caring for Patient with Stroke at Home AbstractMost of the strok patients who return home suffer from disabilities. Disability caused by strok not only impact on strok patients, but also impact on family members who will be the caregiver. The concern to the caregiver is important because the success of the treatment and care of strok patients can not be separated from the help and support provided by the caregiver. This study aims to explore deeply the meaning of family experience as caregiver for strok patients at home. This study is a descriptive phenomenological study. Data were collected through indepth interview. Participants in this study were 16 people who were selected by purposive sampling technique. The data obtained were analyzed by using Colaizzi approach. Results of analysis found 5 (five) themes, namely: giving total support, meeting basic needs, suffering and wisdom for the caregiver, lack of skills in caring for, and limitations of caregiver. Caregiver suffering from physical, psychological, and social problems. In general, caregivers feel neglected, they need information about the patient's illness and how to care for them as well as community resources for health services. Based on the results of the research, it is suggested that discharge planning approach should be focused more on family rather than patient.
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