BackgroundHaving a Rheumatic and Musculoskeletal Disease (RMD) has a big impact on your daily life, work, relationships and quality of life. It can cause various complaints, problems and questions. Research shows that people with an RMD are often insufficiently aware that they can talk about these challenges with their RMD professional. They also don’t realize that these challenges matter when making a fitting choice for treatment. It also appears that RMD professionals do not sufficiently take into account the priorities of their patient, when a treatment choice has to be made. This is unfortunate because research shows that people who decide together with their RMD professional make better informed treatment choices. They are also more likely to adhere to their treatment or medication use. A conversation aid can help people to become aware of the most important challenges or problems in their daily lives with an RMD. These uncovered challenges and problems can set the agenda for a good conversation in the RMD consultation room. Together with the RMD professional the conversation can focus on ways to deal with or treat these challenges or problems.ObjectivesTo develop a conversation aid for people with an RMD that allows them to become aware of the most important challenges in their life with an RMD and that guides them in how to discuss these aspects with an RMD professional.MethodsIn the first step a review was made of all important aspects of a patient’s life with an RMD. The outcome measures of ICHOM for inflammatory arthritis1 and hip- and knee osteoarthritis2 formed the starting point for this review. This was complemented with additional outcomes as measured in Dutch RMD apps and patient dashboards of Dutch hospitals. In the second step, the list of outcomes was assessed by means of a survey among Dutch patients with an RMD. The third step was to discuss the complete list with important outcomes with the Dutch rheumatology department of the Bravis Medical Centre. A first draft version of the conversation aids was made. This draft version was evaluated by patientpartners of the National Association ReumaZorg Nederland (RZN) and the Bravis Medical Centre.ResultsA total of 4 conversation aids (https://reumazorgnederland.nl/samen-beslissen-gesprekskaarten/) were made. Each aid addressing a main category of challenges with an RMD. Each main category was divided into 5 sub-categories. The 4 conversation aids are:Disease: Concerning the sub-categories: Disease activity, pain, fatigue, medication & side effects and knowledge about the disease.Daily activity: Concerning the sub-categories: Work/school, personal care, household & family, mobility, and spare time.Lifestyle: Concerning the sub-categories: Activity, food, stress & relaxing, smoking, and weight.Relationships and well-being: Concerning the sub-categories: Social contacts, intimate relationships & pregnancy & wish for children, incomprehension, loneliness, and gloom.To advance Shared Decision Making (SDM), a separate conversation aid was made with tips and tricks for having a good conversation with your RMD professional:A good conversation: tips and tricks for preparing a conversation with your RMD professional. As well as tips and tricks that can be used during and after your conversation.In Figure 1 the conversation aid with main category lifestyle is presented.Figure 1.Example of the conversation aid with main category Lifestyle.ConclusionA consultation aid can advance a good conversation and therefore SDM, between people with an RMD and their RMD professional. A patient organisation can play an important role in developing a consultation aid.References[1]ICHOM, Inflammatory Arthritis: Inflammatory Arthritis – ICHOM Connect[2]ICHOM, Hip- and Knee Osteoarthritis: Hip & Knee Osteoarthritis – ICHOM ConnectAcknowledgementsThe voice of people with an RMD played a crucial role in the development of these consultation aids. We would like to thank everyone, including Bravis Medical Centre, for their feedback throughout the process.Disclosure of InterestsNone declared.
BackgroundResearch shows that people with Rheumatic and Musculoskeletal Diseases (RMDs), who decide together with their healthcare professionals make better informed treatment choices. They are also more likely to adhere to their treatment or medication use. A conversation aid can help people with an RMD to become aware of their most important preferences and questions about medication. These preferences and questions can set the agenda for a good conversation in the consultation room between the patient and the healthcare professional. Together with the healthcare professional the conversation can focus on the most important benefits, risks and preferences of someone with an RMD, when a medication choice has to be made.Objectives:•To develop conversation aids, that:• oallow people with an RMD to become aware of the most important preferences in making a medication choice• oguide people with an RMD in how to discuss these most important aspects with a healthcare professional•To develop conversation aids that guide healthcare professionals in giving complete information about:• oall important aspects of the medication• ohaving a rheumatic and musculoskeletal disease (RMD)This in order to make the best fitting medication choice together.MethodsIn the first step of the process 2 focus groups were organized. The first focus group consisted of patients of the Erasmus Medical Centre (5 participants) and patient research partners (PRPs) of the National Association ReumaZorg Nederland (RZN) (4 participants). The second focus group consisted of RMD health care professionals (5 rheumatologists, 1 pharmacist, 7 RMD nurses). The aim of the focus groups was to get an overview of important information that has to be shared, when a choice in RMD medication is to be made. In the second step, the output of both focus groups formed the starting point for the content of the conversation aids about medication choices. In the conversation aids all important information, that should be shared when a medication choice has to be made, was formulated in simple short sentences. After that, the content of the conversation aids was assessed by participants of both focus groups. In the third step, a draft version of the conversation aids about medication choices was designed. The conversation aids were designed using the same layout as our earlier developed conversation aids ‘What is important to you and how can you talk about this?’. This draft version was again evaluated by participants of both focus groups, until we reached a final version.ResultsA total of 4 conversation aids (https://reumazorgnederland.nl/samen-beslissen-medicijnkaarten/) were developed.•Who are you?:To allow people with an RMD to share their preferences with regards to shared decision making (SDM), about the way they like to receive information and about the way they prefer to take their medication.•About medication: To allow healthcare professionals to give a complete overview of the most important aspects of RMD medication and to allow people with an RMD to share their most important questions about RMD medication.•Groups of medication: To give an overview of the different groups of RMD medications.•About arthritis:To give an overview of the most important aspects of having an RMD.The 5thdeveloped conversation aid (https://reumazorgnederland.nl/samen-beslissen-medicijnkaarten/) focused on reliable sources for information.•More information:A conversation aid with reliable sources to obtain more information about shared decision making, about having a rheumatic and musculoskeletal disease (RMD) and about RMD medication.Example of the first part of conversation aid ‘Who are you?’Figure 1.ConclusionThese conversation aids can encourage and advance a good conversation about RMD medication, that best fits the patient’s need and preferences, when having an RMD. They stimulate both the patient as well as the healthcare professional to share much-needed information, when making a choice in medication. A patient organisation can play an important role in developing a conversation aid to support patients.AcknowledgementsA special word of gratitude goes out to the patient research partners who contributed to the patient perspective in this project by either being part of the working group or by sharing their perspectives in the focus group. Our gratitude also goes out to all the RMD professionals who shared their opinion in the focusgroup.Disclosure of InterestsNone Declared.
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