No abstract

Milan Kundera's novel Immortality bears a close relation to contemporary social science debates about the production of the self. Commentators like Kleinman and Mishler seem to have introduced a new version of authenticity based on a reinvention of the Romantic subject with the interview (as the medium) and the narrative (as the content) portrayed as the means for constructing and sharing biographical expenence. Unlike such contem porary Romantics, Kundera examines how the subject is constructed in literary biography and mass media "imagology." The authors show how Kundera's work leads in two possible directions: an analysis of the interview society and a concern with strategies for the invention of the self. By locating styles of the self, the authors reveal lively and skillful biographical work, overlooked by cultural critique and not reducible to any structural determinism.

The communication of risk is a central activity in clinical genetics, with genetic health professionals encouraging the dissemination of relevant information by individuals to their at-risk family members. To understand the process by which communication occurs as well as its outcomes, a systematic review of actual communication in families about genetic risk was conducted. Findings from 29 papers meeting the inclusion criteria were summarised and are presented narratively. Family communication about genetic risk is described as a deliberative process, in which: sense is made of personal risk; the vulnerability and receptivity of the family member is assessed; decisions are made about what will be conveyed; and the right time to disclose is selected. The communication strategy adopted will depend on these factors and varies within families as well as between families. Inherent in these processes are conflicting senses of responsibility: to provide potentially valuable information and to prevent harm that may arise from this knowledge. However, the research 'outcomes' of communication have been professionally determined (number of relatives reported as informed, uptake of testing, knowledge of the recipient) and are typically unrelated to the concerns of the family member. The impact of communication on the individual, family members, and family relationships is of concern to the individual conveying the information, but this is largely self-reported. Currently, there is insufficient information to inform the development of theoretically and empirically based practice to foster 'good' communication. The implications for future research are discussed.

Sociologists, anthropologists, and others are paying increasing attention to the collection and analysis of personal narratives. This is true of qualitative health research, where narratives of suffering and illness have been granted special status. The article endorses a narrative approach but offers a criticism of research in which narratives are regarded as offering the analyst privileged access to personal experience. It is suggested that an appeal to narratives too often includes inappropriate assumptions concerning human actors and social action. The argument is developed primarily through a reading of several major authors in the field.

In this paper we address a number of contemporary themes concerning the analysis of qualitative data and the ethnographic representation of social realities. A contrast is drawn. On the one hand, a diversity of representational modes and devices is currently celebrated, in response to various critiques of conventional ethnographic representation. On the other hand, the widespread influence of computer- assisted qualitative data analysis is promoting convergence on a uniform mode of data analysis and representation (often justified with reference to grounded theory). We note the ironic contrast between these two tendencies, the heterodox and the orthodox, in contemporary qualitative research. We go on to suggest that there exist alternatives that reflect both the diversity of representational approaches, and the broader possibilities of contemporary computing. We identify the technical and intellectual possibilities of hypertext software as offering just one such synthesis.