Few qualitative studies have explored the 'meaning' of life experiences for persons with ALS. We aimed to identify the meaning of QoL in five selected individuals, and to consider how their experience of health care affected perceived well-being, using a phenomenological approach. Four of the five participants were revisited. Themes that emerged included: importance of faith, search for control, importance of dignity, desire to maintain identity, importance of family, a sense of loss, importance of altruism and support, fighting amyotrophic lateral sclerosis, and appreciation of life. All participants felt that professional services contributed to their well-being. QoL remained individual and multi-dimensional and was defined by cognitive and behavioural strategies used to cope with ALS. Our findings highlight the need to consider how persons with ALS may adapt to progressive illness.
The risk factors prevention paradigm (RFPP) is currently the dominant discourse in juvenile justice, exerting a powerful influence over policy and practice in the UK, Ireland and other countries. This article argues that the predominance of the RFPP is in many ways an obstacle to a fuller understanding of, and more effective response to, youth crime. Part of the problem is the often over-simplified assumptions and exaggerated claims of the RFPP literature, which translates the findings of risk-focused research for policy makers and for popular consumption, but largely ignores the caveats of the scientific researchers themselves. Moreover, the RFPP has intrinsic, but generally neglected, methodological and theoretical shortcomings, which mean that it fails to account properly for key facets of youth justice, such as personal agency, socio-cultural context, psychological motivation and the human rights dimension.
During the last trimester of pregnancy, 127 primiparous Irish mothers were interviewed to ascertain their history of alcohol and tobacco use. Confounding effects due to other drugs were not a factor in this sample. Mothers consumed an average of .21 ounces absolute alcohol (AA) per day, with 62% classified as moderate drinkers, 10.6% as heavy drinkers, and 26% as nondrinkers. Neurobehavioral status was measured using acoustic characteristics of the infant's cry, collected on the third day of life. Multiple regression analysis showed that more ounces AA per day was related to more dysphonation and higher first formant, while more cigarette smoking was related to higher pitch, higher second formant, and more variability in the second formant. Analysis of variance comparisons of these 3 alcohol groups demonstrated significant cry effects on infants of heavy drinking mothers.
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