Objective: To elucidate the experiences of being an adolescent sibling in a family that includes a child with cerebral palsy (CP) and pain, from the perspectives of siblings and parents. Methods: Seven siblings and 10 parents were individually interviewed to systematically analyse the experiences of siblings and parents with children with CP and pain. The interviews were analysed by using qualitative content analysis according to Graneheim and Lundman. Results: The theme 'Making pain common ground for support' and three categories combined the non-disabled adolescent sibling and parental experiences of the child's pain, and point to the need for support of the non-disabled siblings. Dysfunctional coping influences the siblings' daily life and future health. Siblings wanted closer contact with the Development Centre in order to alleviate their negative emotions. Conclusions: As Development Centre physiotherapists meet the families to the child with CP, they can be a link to the sibling. Physiotherapists can educate siblings on pain and how to better cope with stress and emotional discomfort caused by their sibling's CP and pain.

Background Young people in different healthcare settings are positive about using electronic patient-reported outcomes (ePROs), which are meant to increase the effectiveness and safety of interventions from the patient’s perspective. Sweden offers free healthcare to young people aged 12–25 years at 275 youth health clinics (YHCs), whose goals are to strengthen young people and promote sexual, physical, and mental health. YHCs need effective ways to identify the overall picture of young people’s health and health-related problems. To our knowledge, there is no ePRO for YHCs that provides an overview of young people’s health from several health perspectives. The aim of this study was to explore young people’s view on content and design of an ePRO to provide an overview of their health and health related problems when visiting a YHC, and their opinion on what healthcare needs to consider when using the ePRO. This was an explorative qualitative study. The participants were included from five YHCs, in different socioeconomic areas in central Sweden. Fifteen participants were included: 10 girls, three boys, and two non-binary participants with an age range of 16–22 years. Data were collected using a semi-structured interview guide and individual interviews, and inductive content analysis was performed. Results One main theme, “ePRO created based on my needs is worth using” and two sub-themes, “Appealing content and design” and “Trusting healthcare”, emerged. The participants wanted that an ePRO should include overall questions about mental-, physical-, and sexual health and social support. Participants also believed the ePRO must disclose the risks of self-harm or suicide. The participants noted the importance of emotional and digital security when using the ePRO and having a confidential conversation with a healthcare provider. To share health information means to trust to gain health. Conclusions The study participants' views on content and design can form the basis for designing an ePRO for young people. Their thoughts on safety and treatment in healthcare can be considered in the development process. This study is the starting point for developing an ePRO for young people at YHCs.