Talking to children and adolescents with cancer about spirituality is a challenge. This study aimed to develop and evaluate a conversation model for a spiritual approach with children and adolescents with cancer. It was a methodological study with a systematic approach in three stages: (a) review of the literature for the selection of photographs and guiding questions, (b) using an expert committee to evaluate photographs and preselected questions, and (c) cognitive interview with children and adolescents to test the methodology. The expert committee evaluated and selected 20 photos and their respective guiding questions. Fifteen children and adolescents hospitalized with cancer tested the spirituality conversation model and expressed feelings, values, beliefs, fears, and the meaning they give to life and illness. The implementation of the conversation model can contribute both to the clinical practice, facilitating care for the spiritual dimension of pediatric patients, and to qualitative research on spirituality involving children.
Objective: to identify evidence available in the literature on educational strategies used in the teaching of insulin therapy to children and adolescents with Type 1 diabetes mellitus. Method: systematic review undertaken in five databases, using the descriptors Insulin/therapeutic use, Patient education as topic, Diabetes mellitus type 1, Child, Infant, Adolescent and keywords, without any time limit. Primary studies on insulin therapy teaching were included, while research on insulin pumps was excluded. Results: 243 studies were identified, 13 of which were included. The results present educational strategies focused on children, adolescents and young people of up to 24 years of age, applied individually or in groups; by telephone contact or text messages by mobile phone; dramatization and educational camps; by a single professional or a multidisciplinary team. The strategies described in the analyzed studies addressed the adjustment of insulin dosages in everyday situations and education for insulin management, associated with the nutritional strategy of carbohydrate counting, diabetes education with a specific module on insulin therapy and intensive insulin use. The studies analyzed the effect of the educational intervention on several clinical and behavioral outcomes, such as glycated hemoglobin and self-efficacy. Conclusion: this review could not identify a single educational strategy able to improve metabolic and psychosocial outcomes. In most cases, nurses are the professionals responsible for the development of educational strategies focused on insulin therapy in children and adolescents with diabetes, regardless of the context in which they will be deployed. This confirms their role as educators.
Benefits of participation in a summer camp to self-care for children and adolescents with diabetes: the perception of mothersBenefícios da participação em um acampamento no autocuidado de crianças e adolescentes com diabetes: percepção das mãesBeneficios de la participación en un campamento en la autoatención de niños y adolescentes con diabetes: la percepción de las madres AbstrActObjective: To understand the mothers' perception of the benefits of self-care in the routine of their children, after participating in a summer camp for young people with diabetes. Methods: A qualitative descriptive study was performed, in which individual semi-structured interviews with seven mothers were carried out. The themes emerged were coded and grouped by similarity into categories and subcategories, totaling twelve categories. Results: This study showed the importance of the camp to promote self-care. It also revealed that the benefits of such camp extended to all participants involved in this activity. Final considerations:The summer camp proved to be important to promote self-care for children and adolescents with diabetes and it enabled the reflection on how to improve this type of education, so that the knowledge and skills in diabetes developed by children and adolescents can be even more effective and long-lasting. acampamento para promover a educação do autocuidado da criança/adolescente com diabetes, e os benefícios decorrentes dessa experiência, como promoção da independência, melhor controle e aceitação da doença, prazer em participar e extensão dos benefícios à família. Considerações finais: O acampamento mostrou-se importante para promoção do autocuidado da criança/adolescente com diabetes e possibilitou a reflexão sobre como aprimorar essa modalidade educacional para que os conhecimentos e habilidades em diabetes desenvolvidos pela criança/adolescente possam ser ainda mais eficazes e duradores. Palavras-chave:Diabetes mellitus Tipo 1; Educação em Saúde; Acampamento; Mães; Enfermagem Pediátrica. resumenObjetivo: Comprender la percepción de las madres sobre los beneficios en la rutina de sus hijos en relación con el autocuidado, después de su participación en un campamento de verano para jóvenes con diabetes. Métodos: Estudio descriptivo y cualitativo, llevado a cabo a la luz del Interaccionismo Simbólico y del Análisis Cualitativo de Contenido, con siete madres que habían sido entrevistadas. Los datos fueron codificados y agrupados por similitud, lo que originó categorias temáticas. Resultados: Se reveló la importancia del campamento para la promoción de la educación del autocuidado del niño/adolescente con diabetes, así como los beneficios de esta experiência, tales como la promoción de la independencia, un mejor control y aceptación de la enfermedad, el placer de participar y la ampliación de los beneficios para la familia. Consideraciones finales: El campamento se mostró importante para promover el autocuidado del niño/adolescente con diabetes y permitió la reflexión sobre como se puede mejorar esta modalidad ...
Resumo OBJETIVO Analisar a perspectiva da criança sobre a própria condição de saúde, suas experiências relacionadas ao atendimento ambulatorial hospitalar e ao uso de fantoches como estratégia lúdica para a coleta de dados. MÉTODO Estudo qualitativo, incluiu 16 crianças diagnosticadas com doenças crônicas, recrutadas em um ambulatório pediátrico do interior paulista. Os dados foram coletados em outubro de 2016 mediante entrevista semiestruturada e utilizou-se o fantoche como recurso facilitador na comunicação. As entrevistas foram analisadas por meio da análise temática indutiva. RESULTADOS Foram construídos quatro temas: “criança em seguimento ambulatorial: o que elas sabem?”; “emoções que perpassam o seguimento ambulatorial”; “o ambulatório dos meus sonhos”; e “a utilização dos fantoches e o universo lúdico da entrevista”. CONSIDERAÇÕES FINAIS Foi possível identificar o motivo e os principais sentimentos vivenciados durante o atendimento ambulatorial, assim como as preferências das crianças acerca dos aspectos físicos e estruturais do ambulatório.
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