Introduction: The growing number of cancer survivors has expanded the need for physicians familiar with
OBJECTIVEThe extent of shared decision making (SDM) use in the care of Black patients is limited. We explored preferences, needs, and challenges of Black patients to enhance SDM offerings. METHODSWe performed interviews with 32 Black patients receiving type 2 diabetes care in safety-net primary care practices caring predominantly for Black people. RESULTSThe following 4 themes emerged: preference for humanistic communication, need to account for the role of family in decision making, need for medical information sharing, and mistrust of clinicians.CONCLUSION Given the dearth of research on SDM among ethnic and racial minorities, this study offers patient-perspective recommendations to improve SDM offerings for Black patients in primary care settings. To enhance SDM with Black patients, acknowledgment of the importance of storytelling as a strategy, to place medical information in a context that makes it meaningful and memorable, is recommended. Triadic SDM, in which family members are centrally involved in decision making, is preferred over classical dyadic SDM. There is a need to reconsider the universalism assumption underlying contemporary SDM models and the relevancy of current SDM practices that were developed mostly without the feedback of participants of ethnic, racial, and cultural minorities.
195 Background: Long-term chronic lymphoma survivors report lower quality of life compared to those who are cured of lymphoma, despite an equal prevalence of PTSD symptoms in both groups. Posttraumatic Growth (PTG), or positive psychological change following a traumatic event, has been associated with greater acceptance of the disease and greater quality of life, particularly because PTG has been shown to diminish the negative effects of PTSD symptoms. Methods: Semi-structured, in-person qualitative interviews were conducted among a convenience sample of lymphoma survivors. Participants answered questions about their emotional reactions after diagnosis, during treatment, and symptoms of PTSD and positive changes—if any—that developed during the cancer experience. Interviews were audiotaped, transcribed, and analyzed using Grounded Theory methodology. Results: 77 lymphoma survivors - 75% chronic lymphoma, 25% curable lymphoma completed interviews. Themes included 1) disease: perception of health; 2) support system: physician support, social support, and healthcare system support; 3) internal processing: acquiring knowledge, and coping mechanisms; 4) fear: stigma of cancer; 5) growth: relationship with others, and appreciation of life; and 5) acceptance: preparation, and death & dying. Most participants, regardless of chronic or curable diagnoses, reported distress during diagnosis and treatment within the categories: perception of health, healthcare system support, social support, and acquiring knowledge. Chronic lymphoma participants reported less fear and subsequently less growth than their curable counterparts. Participants further viewed their cancer as carrying a different stigma, which then resulted in these blunted reactions. Conclusions: Chronic lymphoma patients do not follow the same psychological trajectory as their curable counterparts with regards to long-term adjustment. They, instead, emulate patients with other chronic disease. The blunted psychological experience of both PTSD symptoms and PTG could potentially explain the lower reports of quality of life in the long term cancer survivor with indolent disease.
External beam ionizing radiation is a fundamental component of cancer treatment and is incorporated into approximately 50% of cancer treatments. Radiation therapy causes cell death directly by apoptosis and indirectly by disruption of mitosis. Purpose of Review This study aims to inform rehabilitation clinicians of the visceral toxicities of radiation fibrosis syndrome and how to detect and diagnose these complications. Recent Findings Latest research indicates that radiation toxicity is primarily related to radiation dose, patient co-morbidity, and concomitant use of chemotherapies and immunotherapies for the treatment of cancer. While cancer cells are the primary target, surrounding normal cells and tissues are also affected. Radiation toxicity is dose dependent, and tissue injury develops from inflammation that may progress to fibrosis. Thus, radiation dosing in cancer therapy is often limited by tissue toxicity. Although newer radiotherapeutic modalities aim to limit delivery of radiation to non-cancerous tissues, many patients continue to experience toxicity. Summary To ensure early recognition of radiation toxicity and fibrosis, it is imperative that all clinicians are aware of the predictors, signs, and symptoms of radiation fibrosis syndrome. Here, we present part 1 of the visceral complications of radiation fibrosis syndrome, addressing radiation-related toxicity in the heart, lungs, and thyroid gland. Graphical abstract
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