Este artigo tem por objetivo analisar o impacto do nascimento de uma criança com paralisia cerebral no núcleo familiar e a percepção dos irmãos frente à situação. Parte-se do pressuposto de que o irmão da criança com deficiência é bastante afetado com o nascimento desta e, frequentemente, pouco assistido. Utilizou-se entrevista semi-estruturada com pais e irmãos primogênitos de crianças especiais, tendo como parâmetro um grupo-controle com os mesmos critérios, sendo que neste a deficiência não estava presente. Foi observado prejuízo na relação pais-primogênitos, bem como precoce amadurecimento destes últimos, ocasionado pela necessidade de adaptação. Por fim, ressalta-se a importância de maior atenção ao irmão da criança especial.

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Traumatic brain injury is one of the main causes of mortality in children or young adults. Patients with moderate or severe TBI can present motor, cognitive, emotional, behavioral, and social functionality sequelae, causing an adverse impact on the individual, his family, and on society. Objective: To investigate the impact that severe traumatic brain injury caused to the life of patients who suffered the injury during childhood and youth, considering cognitive, emotional, and quality of life questions, as well as, to verify whether there are differences with respect to age at the time of injury. Method: A quantitative, qualitative, cross-sectional study carried out at the Ibirapuera unit of the Rehabilitation Center of the Association for Assistance to Disabled Children (AACD). Thirteen patients with severe traumatic brain injury from São Paulo state, participated in the study between January of 2010 and March of 2014. The instruments utilized were: a sociodemographic questionnaire, the Short Form Health Survey (SF-36), the Raven's Progressive Matrices, and the Pfister Colored Pyramid Test. The data collected were evaluated in the overall sample and then divided into two groups based on their age at the time of injury, with group 1 (3 to 7 years and eleven months old) and group 2 (8 to 16 years and eleven months old). Results: On the Raven's test, 76.9% of the participants showed signs of mental impairment. All participants had a good quality of life assessment. In the emotional aspects, there was good adaptability and interaction. Upon comparison, there was no difference between groups. Conclusion: The results were consistent with studies that indicate cognitive impairment and good perception of quality of life. Arruda BP, Akamatsu PYF, Xavier AP, Costa RCV, Oliveira-Alonso GS, Madaleno IMP Traumatic brain injury and its implications on cognition and quality of life Keywords

Traumatic brain injury is one of the main causes of mortality in children or young adults. Patients with moderate or severe TBI can present motor, cognitive, emotional, behavioral, and social functionality sequelae, causing an adverse impact on the individual, his family, and on society. Objective: To investigate the impact that severe traumatic brain injury caused to the life of patients who suffered the injury during childhood and youth, considering cognitive, emotional, and quality of life questions, as well as, to verify whether there are differences with respect to age at the time of injury. Method: A quantitative, qualitative, cross-sectional study carried out at the Ibirapuera unit of the Rehabilitation Center of the Association for Assistance to Disabled Children (AACD). Thirteen patients with severe traumatic brain injury from São Paulo state, participated in the study between January of 2010 and March of 2014. The instruments utilized were: a sociodemographic questionnaire, the Short Form Health Survey (SF-36), the Raven’s Progressive Matrices, and the Pfister Colored Pyramid Test. The data collected were evaluated in the overall sample and then divided into two groups based on their age at the time of injury, with group 1 (3 to 7 years and eleven months old) and group 2 (8 to 16 years and eleven months old). Results: On the Raven’s test, 76.9% of the participants showed signs of mental impairment. All participants had a good quality of life assessment. In the emotional aspects, there was good adaptability and interaction. Upon comparison, there was no difference between groups. Conclusion: The results were consistent with studies that indicate cognitive impairment and good perception of quality of life

Objetivo: Investigar a correlação existente entre o nível de estresse de crianças pós-operadas, de 11 a 14 anos de idade, em relação à qualidade da percepção destes pacientes sobre o suporte familiar recebido durante o processo de reabilitação física. Método: Trata-se de um estudo transversal, com análise qualitativa e quantitativa, desenvolvido em um centro de reabilitação, no município de São Paulo. Os instrumentos aplicados nos pacientes foram: Escala de Stress Infantil (ESI), Inventário de Percepção do Suporte Familiar (IPSF) e no respectivo cuidador, um questionário de caracterização dos participantes. Resultados: Os dados foram analisados estatisticamente e se observou significância estatística entre o fator Adaptação (IPSF) com a dimensão Reações psicológicas com componente depressivo (ESI). Houve associação significativa entre o escore total da ESI e do IPSF. Neste estudo, das crianças com sinais significativos de estresse, a maioria apresentou baixa/ médio-baixa percepção do suporte familiar. Discussão: A percepção do paciente sobre o meio pelo qual se relaciona é um importante indício do enfrentamento às situações adversas vividas no meio social, conforme associação encontrada neste estudo. Conclusão: Os aspectos relacionados à maturidade cognitiva e emocionais da criança contribuem na qualidade da percepção do suporte familiar. É importante que novos estudos sejam realizados para ampliar as discussões nessa área