Self-administered questionnaires via Tablet PC are a facile and capable option in patients with rheumatic diseases to monitor disease activity, efficacy and safety assessments continuously. Tablet PC applications offers directly available data for clinical decision-making improves quality of care by effective patient monitoring, and contributes to patients' empowerment.
Objective. To analyze the inquiries sent to an online ask-the-rheumatologist service in order to identify the users' needs and requirements. Methods. The official web site of the German Competence Network Rheumatology (www.rheumanet.org) provided expert information for patients, relatives, and physicians. We analyzed the content of 1,133 inquiries posted over 5 years and the experts' answers were blinded for analyses. Results. Patients (60.0%), relatives (24.3%), and physicians (15.7%) addressed the experts. Inquiries were predominantly sent by women (62.2%). Distinct rheumatic diseases were mentioned in 40.5% of the inquiries, and 16.3% reported musculoskeletal symptoms without a definite diagnosis. The number of questions ranged from 1-7 per inquiry (mean ؎ SD 1.58 ؎ 0.9). Of the inquiries, 33.2% contained personal histories, 24.9% searched for a rheumatologist nearby, and 11.6% asked for a "second opinion." The questions covered a wide range of interests, including medication (30.8%), diagnosis-related issues (15.7%), laboratory tests (6.9%), (treatment) guidelines (6.2%), sexual and reproductive health issues (4.1%), and clinical trials (3.4%). In more than 50% of the inquiries, the information requested from the experts was already at least partly published on the web site. The experts' answers covered the users' questions completely in 91.8%, partly in 6.1%, and not at all in 2.1%. Conclusion. A standardized medical web site providing tailored and trustworthy information for all user groups gains from an ask-the-expert service. Only such an interactive online application is able to satisfy users' actual demands: searching for specific individualized information on the internet. Therefore, an ask-the-expert service contributes to optimized patient care. INTRODUCTIONOnline health information and communication services are increasingly used by patients, relatives, and physicians (1-5). Besides general health portals and e-communication with personal health care providers, web-based consultations in expert forums (ask-the-doctor services) have become increasingly important sources of information (1,2,(5)(6)(7)(8).Various reasons for the use of web-based expert services have been identified (1,2,5,9 -11). However, little is known about the users of an ask-the-doctor service, and about the communication between the users and the experts in rheumatology. The official web site of the German Competence Network Rheumatology was launched on www.rheumanet. org in 2000 and had ϳ17,000 users per month in 2006 (12). Due to an administrative reconstruction of the network, it was transferred to www.dgrh.de in 2007. The web site offers a large variety of standardized and trustworthy information for rheumatology patients, relatives, and physicians (12). It includes trustworthy information on rheumatic diseases, treatment (options), recommendations for disease monitoring, the ability to search for a local rheumatologist, a tool that provides a risk assessment for inflammatory rheumatic diseases, monthly chats between users an...
Internet is an important information medium for patients. Technical requirements and high motivation make communication practicable for about 50% of patients. To ensure acceptance, the Internet platform of the systemic inflammatory rheumatic diseases network needs to be aligned to patients' requirements, bearing in mind the need for extensive high-value, reliable scientific information to be offered on the website.
Use of the Internet for communication in the "Systemic Inflammatory Rheumatic Diseases Network" is practicable in hospitals but clearly restricted in the private practice sector. The widely varying software used in hospitals and private practices underlines the need for standardized, comprehensive documentation systems to be developed. To ensure acceptance and broadly based application, they need to be integrated into the existing computer infrastructure. In this context, Internetbased applications offer new opportunities through the use of system-independent file formats.
Concepts of documentation rely not only on the contents required and technical demands, but the procedures covered and in medical applications especially security aspects are also matters of critical concern. Even though the need for effective documentation (i.e., adequate in content, availability, feasibility and easy to retrieve analysis) is not a question, tasks and aims (for example, quality of patient care) deserve attention and establishing efforts have to be analyzed regarding their structural and personal prerequisites and implications before particular tools for documentation can be developed.
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.
customersupport@researchsolutions.com
10624 S. Eastern Ave., Ste. A-614
Henderson, NV 89052, USA
This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.
Copyright © 2025 scite LLC. All rights reserved.
Made with 💙 for researchers
Part of the Research Solutions Family.