Background: Phenylketonuria is a hereditary disease caused by the lack or deficiency of phenylalanine hydroxylase enzyme activity. Parents of children with phenylketonuria undergo significant stress during their childcare years. They are also responsible for controlling their children's dietary treatment and this may affect their quality of life. The purpose of this study was to investigate the relationship between stress and quality of life in parents of children with phenylketonuria. Methods:The present cross-sectional study is a correlation-analytical research performed on parents of children with phenylketonuria in Kerman province in Iran in 2017. In total, 124 parents were chosen by consensus method. Parents completed the perceived stress scale and quality of life (SF36). SPSS software version 18 (https://www. presidion.com/software/ibm-spss-trial-downloads/) was used to analyze the data.Results: Total scores of stress and quality of life were 28.81 ± 8.74 and 45.97 ± 21.22.There was a significant negative correlation between quality of life and perceived stress (p < 0.001 and ρ = −0.58). Conclusion: Parents of children with phenylketonuria have moderate quality of life and relatively high stress. The medical community and authorities should take steps to improve the quality of life and reduce stress experienced by parents of children with phenylketonuria. K E Y W O R D S parents, phenylketonuria, quality of life, stress members; families with children suffering from chronic and chronic metabolic disease have lower quality of life and tolerate more anxiety (Mahmoudi-Gharaei et al., 2011). So far no study has been conducted with the parents of PKU children in Iran and the results of this study may indicate the need to pay attention to the psychological aspects of having a child with PKU or other chronic diseases. | LimitationsThe number of subjects was a limitation for this study. | ConclusionThe results demonstrated that PKU disease increases the level of stress in parents and decreases their quality of life. Also, the results indicate that parents did not have enough skills to control their stress. Therefore, it seems workshops for stress management and increasing the quality of life should be available for these parents. Also, interventions by the health team and especially nurses are essential for the success of the treatment of patients with PKU.This study has several implications. It can be useful for nursing in clinical setting. Nurses should pay more attention to the parents of children with PKU. They should teach the parents to control their stress and improve their quality of life.The researchers also suggest that interventional studies be conducted to improve the quality of life of parents and reduce their stress and anxiety. ACKNOWLEDGMENTSThis study is based on the student's dissertation at the Faculty of Nursing, Kerman University of Medical Sciences. Hereby the authors appreciate the cooperation of the late Dr. Masoumeh Rashidi Nezhad at the early stages of the study but unfortunately passed aw...
Background & Aim: One of the main concerns in patients with myocardial infarction is that there is no return to sexual activities. Sexual counseling is an interaction between patient and nurse that requires appropriate performance, responsibility, and confidence. The present study aimed to determine nurses' performance, responsibility, and confidence in sexual counseling of myocardial infarction patients. Methods & Materials: This descriptive/analytical cross-sectional study was carried out on 180 nurses from the cardiac care unit (CCU) at the hospitals located in southeastern Iran in 2018. Sampling was performed with the census method; and the data collection tool was a demographic information form and questionnaire, involving nurses' performance, responsibility, and confidence in sexual counseling of cardiac patients. Information was analyzed using SPSS software (ver.18) through descriptive and inferential statistics, including t-test, ANOVA, and Pearson correlation coefficient. The significance level was considered as 0.05. Results: The mean of total performance scores in the nurses was 14.54 ± 4.4, indicating the average performance of nurses in the sexual counseling of myocardial infarction patients. The total mean score of responsibility was 14.32±2.7, indicating their average responsibility in sexual consultation. The total mean score of confidence was 12.86±2.35, indicating their average confidence in the sexual counseling of cardiac patients. Conclusion: The present research showed that nurses’ performance and confidence were not high or acceptable in the sexual counseling of patients with a myocardial infarction, which can lead to some dangerous events such as recurrent myocardial infarction or sudden death. Thus, holding some workshops or training related to the sexual counseling of the patients can assist nurses to be better in this case.
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