This paper reports on a systematic literature review to examine the association between children and young people's participation in arts activities and their academic achievement. The 24 studies that met our criteria for inclusion and weight of evidence (2004-16) had mixed findings. Whilst many of the research designs employed would not meet positivist criteria for rigoursuch as sample size, statistical significance and causalitytypically required by public bodies to justify expenditure, there are examples throughout the literature reviewed of academically-related benefits to participants, such as increased confidence, creativity or more positive attitude towards their studies. Overall, there appears to be some justification from the literature for public investment in high-quality, long-term arts education programmes for children and young people in schools and community settings, on the basis of its potential to enhance academic achievement. However, there may be more intrinsic benefits to arts participation than the instrumental, essentially economic justification of improved academic standards.
This paper addresses the stories of volunteers in hospice and palliative care (HPC) from eight European countries. The aims of the paper are to explore the experiences of volunteers in HPC from their insider perspective, to understand why volunteers choose to work in this field and to understand what it means to them to be involved in palliative care in this way. Stories were collected by the European Association for Palliative Care (EAPC) Task Force for Volunteering contacts in each of the eight countries. The majority of stories (n = 32) came from volunteers involved in different settings including adult patient’s homes, hospices, hospitals and care homes. Twenty volunteers were female, six were male, and ten did not give their gender. Stories were translated into English, and a qualitative framework analysis was performed. Volunteers were asked two questions: ‘What do you do as a volunteer?’ ‘What does volunteering mean to you?’ Three themes were identified from the data: (i) What volunteers do (ii) How volunteers approach their work and (iii) What working in HPC means to volunteers. The analysis revealed that common approaches to addressing and describing HPC volunteering in terms of tasks and roles could be expanded. To volunteers, it is not about tasks, but about a part of their life, the impact upon which can be significant. The results of this paper, therefore, add to the understanding of volunteers, in the sense of giving attention, being with, and of compassion as a community resource to patients and families in difficult situations. Theories about presence and presencing might have value in further underpinning this contribution to palliative care. Understanding the extent and depth of the volunteers’ experience will help to prevent the undervaluing of their contribution and increase the impact of their involvement.
ObjectiveTo assess the involvement of volunteers with direct patient/family contact in UK palliative care services for children and young people.MethodCross-sectional survey using a web-based questionnaire.SettingUK specialist paediatric palliative care services.ParticipantsVolunteer managers/coordinators from all UK hospice providers (n=37) and one National Health Service palliative care service involving volunteers (covering 53 services in total).Main outcomesService characteristics, number of volunteers, extent of volunteer involvement in care services, use of volunteers’ professional skills and volunteer activities by setting.ResultsA total of 21 providers covering 31 hospices/palliative care services responded (30 evaluable responses). Referral age limit was 16–19 years in 23 services and 23–35 years in seven services; three services were Hospice at Home or home care only. Per service, there was a median of 25 volunteers with direct patient/family contact. Services providing only home care involved fewer volunteers than hospices with beds. Volunteers entirely ran some services, notably complementary therapy and pastoral/faith-based care. Complementary therapists, school teachers and spiritual care workers most commonly volunteered their professional skills. Volunteers undertook a wide range of activities including emotional support and recreational activities with children and siblings.ConclusionsThis is the most detailed national survey of volunteer activity in palliative care services for children and young people to date. It highlights the range and depth of volunteers’ contribution to specialist paediatric palliative care services and will help to provide a basis for future research, which could inform expansion of volunteers’ roles.
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