The aim of this study was to elaborate a booklet for health follow-up and guidance on sickle cell disease for relatives of children with this disease and validate it. It is a methodological study, conducted from May 2017 to February 2018, of the elaboration and validation of an educational technology, constructed from previous field research in a pediatric hospital in Ceará (ethical opinion nº 994.879 and nº 955.727). Validation of content and appearance occurred by specialized, technical and communication judges; after the adjustments, the evaluation by representatives of the target public took place. The analysis was through the Concordance Index. Results: the evaluation of technical judges and experts reached a Global Concordance Index of 0.93, characterizing the book as good quality. The judges of communication evaluated all items as Superior. As for family members, everyone agreed that the book was adequate. It is concluded that the booklet has been duly drawn up and validated as regards its content and its appearance. Implications for practice: this educational technology is an important instrument to be used by health professionals, aiming to contribute to increase the knowledge of the relatives of children with sickle cell disease.

Objective: to understand the access of children and adolescents with disabilities to Primary Health Care services based on family experience. Method: this is a qualitative, descriptive, exploratory study, developed from semi-structured interviews, performed in a pediatric referral hospital. The data were analyzed by the Thematic Categorical Analysis Technique. Results: The findings revealed an underutilization of these services as a result of their weaknesses in the care and access of children and adolescents with disabilities, such as the lack of structural adaptations for these people and qualified health professionals. Conclusion: primary Care needs to undergo restructuring, both in its physical conditions and the training of its human resources and the creation of strategies that contribute to the access of infants with special health needs.

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A Diabetes Mellitus tipo 1 (DM tipo 1) é uma doença crônica de caráter multifatorial, que pode atingir qualquer idade, sendo mais comum em crianças, adolescentes e jovens. A DM pode ser administrada através de quatro pilares básicos: insulino-terapia, dietoterapia , monitorização do controle glicêmico e exercício físico. A educação em saúde é uma importante ferramenta que pode ser usada para contribuir com alguns desses pilares. Objetivou-se desenvolver uma tecnologia educativa para adolescentes com DM tipo 1. Trata-se de um estudo metodológico. Os passos foram: 1) Aprovação do projeto no Comitê de Ética em Pesquisa; 2) Revisão de literatura e documental; 3) Seleção do Conteúdo; 4) Construção da história em quadrinho; 5) Validação interna.Na análise estatística,o Índice de Validade de Conteúdo (IVC) global da tecnologia educativa foi de 95% entre juízes de conteúdo e juízes técnicos. Entre os especialistas de design e marketing, a tecnologia educativa foi considerada como material superior, 94,61%. A avaliação dos juízes de conteúdo, classificou a tecnologia educativa validada com um IVC de 0,96. O IVC da tecnologia educativa foi de 1,0, ratificando a validação da sua aparência e conteúdo junto ao grupo de juízes técnicos e de propaganda e marketing. Desse modo, a cartilha educativa constitui material válido e confiável que pode ser utilizado como ferramenta na educação em saúde e servir como fonte de guia para os adolescentes que vivem com diabetes tipo 1, promovendo a adesão e o autogerenciamento do tratamento.