Background: Aim: The study compared child participation of children undergoing dialysis with that of normal population. Study design: comparative study design. Place and Duration of Study: This study was conducted in Sparsh Rotary south end charitable trust, Batra Hospital, New Delhi during year 2013-2015.Subjects and Methods:In this study design thirty children, fifteen children undergoing dialysis (5-18) years were recruited from Sparsh, Rotary south end charitable trust. And fifteen children without any problem were selected as per inclusion criteria. The participation in home-school and community of these children is measured using Child and Adolescent Scale of Participation (CASP and Life balance and perceived stress in caregivers was measured with Life Balance Inventory (LBI) and Perceived Stress Scale (PSS) respectively. The same scales were used for normal population. The scores was collected from each scale and statistically analyzed for both groups.Result:Results revealed that children on dialysis have less participation in home school and community with that of normal population. The perceived stress of caregivers of these children is also very higher and life balance score was found to be lesser when compared with caregivers of normal population.Conclusion:Clinical intervention of children undergoing dialysis is narrowed upon only medical intervention and not focuses more on participation. The Occupational Therapy intervention should be given to children undergoing dialysis.
Objective: To develop a self-report questionnaire to measure functional limitation in children aged 7- 12 years with physical dysfunction.
Study design: Methodological research design
Method: The study was conducted in phases: drafting of the questionnaire, content validation, pilot testing, revision of the questionnaire, field testing and test-retest reliability. A total of 66 items were generated through a review of the literature and interviews of twenty five children, their parents and health-care professionals. Qualitative and quantitative content validation through expert review and item reduction resulted in a 59-item questionnaire which was pilot tested on a sample of 10 children with physical dysfunction. With further inputs the questionnaire was revised. Thus, the final questionnaire with 60 items in two versions (a child and a caregiver’s version) in both Hindi and English was developed.
Results: Qualitative review and Content validity was established for the Children’s Functional Limitation Scale. The questionnaire demonstrated high internal consistency (Cronbach’s alpha=0.91), moderate agreement between parents and children (weighted kappa= 0.718) and good test-retest reliability (weighted kappa=0.88).
Conclusion: “Children’s Functional Limitation Scale” is a valid and reliable tool for documenting difficulties perceived by children with physical dysfunction. Also, the study demonstrates ability of children to reliably report their limitations.
Keywords: Functional limitation, Activities of Daily living, Self-Report, Questionnaire, Children with physical dysfunctions
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