Background:The study aimed to assess needs of children with cerebral palsy undergoing hyperbaric oxygen therapy. Research Design: A descriptive design was used to conduct this study. Settings: This study will be conducted at Hyperbaric Oxygen Therapy Unit at Nasser Institute for Research and Treatment. Subject: A convenient sample composed of 110 children fulfilling the inclusion criteria of the study and their accompanying parents. Tools: data collection involved an interviewing questionnaire adapted from (Narayanan et al, 2006). Results: this study showed that the needs of children were physical, psychological, social. Also the majority of studied children total dependent on their parents to fulfilling their needs. Conclusion: the needs of children include: crutches to help moving in hyperbaric chamber, ways to facilitate communication, instructed about middle ear equalization, reassurance, family support during period of treatment. Recommendation: Further researches should be conducted to develop strategy to overcome unfulfilled health needs of children with cerebral palsy undergoing hyperbaric oxygen therapy.
The objective of this study was to evaluate the effect of a self-learning package on mothers' knowledge and practices towards caring for their children with phenylketonuria. A pre/post quasi-experimental study was conducted, including 128 mothers of children diagnosed with phenylketonuria. A specifically designed and validated questionnaire was used to evaluate mothers' knowledge and reported practices toward their children before and after participating in the educational program. There was a highly positive association between knowledge and reported practice (.674 and .398). The self-learning package had a positive impact on mothers' knowledge and practices. Consequently, educational programs should be provided to all mothers of newly diagnosed cases to improve their children's adherence to the therapeutic regimen.
Background: Phenylketonuria (PKU) is an autosomal recessive inborn error of phenylalanine metabolism resulting from deficiency of phenylalanine hydroxylase (PAH). Aim:The objective of this study was to evaluate effect of educational program on mothers' knowledge, practices and behavior towards caring for their children having Phenylketonuria. Methods: A pre/post quasi experimental study was conducted on 128 mothers. Settings: The study conducted at the Metabolic Clinic,
Background: Beta-thalassemia major is the most common hemoglobin disorder in the world. Assessing the knowledge of the children and adolescents regarding a betathalassemia major is important because helps to avoid complications. This study aimed to assess knowledge of children ß-TM about their disease. Design: Descriptive exploratory design. Settings: The study conducted at Hematology Outpatient Clinics and inpatients word at Children's Hospital affiliated to Ain Shams University. Sampling: A purposive sample comprised of 80 children with beta thalassemia major. Tools: Part 1: Designed questionnaire. Part 2: History of studied children regarding beta-thalassemia major. Part 3: Knowledge of the children regarding beta-thalassemia major. Part 4: Evaluating informational needs of studied children about beta-thalassemia major. Results: Current study revealed that the mean age of studied children was 14.25 ± 2.8 years and slightly more than half of them were female, about more than half of studied children had unsatisfactory knowledge about beta-thalassemia major. Conclusion: Current study revealed that more than half of the studied children were had unsatisfactory knowledge regarding beta-thalassemia major. Recommendation: Provide continuous health education to children with betathalassemia major regarding their disease.
Background: Although medication adherence is important for diabetic children to prevent disease-related complications and improve quality of life, the rate of children adherence to therapeutic regimen is somewhat disturbing. Hence, this study aimed to assess factors affecting adherence toward therapeutic regimen among children with type 1 Diabetes Mellitus. Design: Descriptive exploratory design. Setting: This study was conducted at Diabetic Outpatient Clinic in Children's Hospital affiliated to Ain Shams University Hospitals. Sampling: A purposive sample comprised of 175 children with type 1 Diabetes Mellitus. Tools:I-Interviewing questionnaire; it was used to assess factors affecting adherence toward therapeutic regimen II-Morisky Scale: it was used to assess children' adherence to medication. Results: This study revealed that the mean age of studied children was 13.01±2.4yearsand slightly more than half of them were female. Most of studied children were adhered toward medication regimen and had agreement with beliefs toward therapeutic regimen. In addition, more than half of studied children had positive attitude factors toward adherence to therapeutic regimen, had social support factors to therapeutic regimen and did not have sufficient health care system factors. Conclusions: Attitude factors, social support factors, therapy factors, health care system factors and disease factors positively affected studied children' adherence towards therapeutic regimens. Meanwhile, beliefs factors and motivation factors did not have a significant effect on studied children' adherence towards therapeutic regimen. Recommendation: Continuous health teaching to children with type 1 diabetes to improve their adherence.
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