Objectives: To assess and correlate the quality of life and adherence to antiretroviral therapy in people with HIV. Methods: A cross-sectional study was performed with 45 outpatients with HIV. The instruments used were: a questionnaire to assess adherence to antiretroviral therapy (CEAT-HIV), and a scale for assessing quality of life in people with HIV (HAT-QoL). A descriptive analysis was performed and the Spearman's linear correlation test was used. Results: Quality of life was compromised in the dimensions related to overall function; sexual function; health, disclosure and financial worries; and HIV mastery. Poor adherence prevailed in 51.3% of participants. The correlation between the scores of the scales was statistically significant in the dimensions of medication concerns and provider trust. Conclusion: The quality of life was compromised in six dimensions of the scale and adherence scale was inadequate in most people with HIV. ResumoObjetivos: Avaliar e correlacionar a qualidade de vida e a adesão à terapia antirretroviral em pessoas com HIV. Métodos: Estudo transversal, desenvolvido com 45 pessoas com HIV em tratamento ambulatorial. Os instrumentos utilizados foram: questionário para avaliação da adesão ao tratamento antirretroviral (CEAT-VIH) e escala para avaliação da qualidade de vida em pessoas com HIV (HAT-QoL). Foi realizada análise descritiva e empregado o teste de correlação linear de Spearman. Resultados: A qualidade de vida mostrou-se comprometida nos domínios relacionados às atividades gerais; sexuais; preocupação com a saúde, com o sigilo, com questões financeiras; e conscientização sobre o HIV. Houve predomínio da adesão inadequada em 51,3% dos participantes. A correlação entre os escores das escalas mostrou significância estatística nos domínios relacionados à medicação e confiança no profissional. Conclusão: A qualidade de vida apresentou comprometimento em seis domínios da escala e a adesão encontrou-se inadequada na maioria das pessoas com HIV.
ABSTRACT:The aim of this study was to evaluate the social support for people with AIDS. It was a cross-sectional study, with 215 outpatients at a University Hospital in Northeastern Brazil. Data were collected from August to December 2012, through interviews, using a Socio-demographic and Clinical Form and a Social Support Scale for People Living with HIV/AIDS. Statistical Package for the Social Science was used for data analysis. Results showed that average scores of social emotional and instrumental support were satisfactory and not influenced by sex (p=0.954; p=0.508), education (p=0.756; p=0.194), marital status (p=0.076; p=0.446) and length of antiretroviral therapy (p=0.480; p=0.120). People diagnosed for less than three years had more instrumental support (p=0.048) than those diagnosed over three years (p=0.370). Neighbors, employers and health professionals provided less support. The conclusion was that people with AIDS have satisfactory social support, especially from friends and family not living in the same household. DESCRIPTORS: APOYO SOCIAL DE LAS PERSONAS QUE VIVEN CON SÍNDROME DE INMUNODEFICIENCIA ADQUIRIDARESUMEN: Este estudio objetivó evaluar el apoyo social a personas con SIDA. Estudio transversal con muestra de 215 pacientes ambulatorios de un hospital universitario del nordeste de Brasil. Los datos recolectados entre agosto y diciembre de 2012, a través de entrevistas utilizando el formulario sociodemográfico y clínico y la Escala de Apoyo Social para las Personas que Viven con VIH/SIDA. El Statistical Package for the Social Science fue utilizado para análisis de datos. Los resultados evidenciaron que las puntuaciones medias de apoyo social emocionales e instrumentales fueron satisfactorios, y no influenciados por el sexo (p=0,954; p=0,508), educación (p=0,756; p=0,194), estado civil (p=0,076; p=0,446) y tiempo de terapia antirretroviral (p=0,480; p=0,120). Las personas diagnosticadas en menos de tres años tenían más apoyo instrumental (p=0,048) que los diagnosticados hace más de tres años (p=0,370). Los vecinos, jefe y profesionales de salud proporcionaban menos apoyo. Se concluyó que personas con SIDA tienen un apoyo social satisfactorio, principalmente por parte de amigos y familiares que no viven en el mismo hogar.DESCRIPTORES: Síndrome de inmunodeficiencia adquirida. VIH. Apoyo social.
Objective: To analyze the social support of people with HIV/AIDS from the perspective of the Social Determinants of Health Model. Method: This was a cross-sectional study conducted in 2015 in an infectious disease outpatient clinic. The sample was made up of 116 people with HIV/AIDS. The data was collected through interviews, using a sociodemographic form and a social support scale. The data was analyzed using descriptive statistics, and Student's t-tests and Mann-Whitney tests were performed to determine the association between social support and the social determinants of health. Results: Total social support was satisfactory, emotional support was infl uenced by smoking (p=0.0432) and instrumental support, by the number of people in the household (p=0.0003). The main source of instrumental and emotional support was relatives living outside the household, corresponding to 66.7% and 56.1%, respectively. Conclusion: It was found that smokers havelower emotional support and people living alone received less instrumental support. Descriptors: HIV; Acquired Immunodefi ciency Syndrome; Social Support; Social Determinants of Health; Public Health. RESUMO Objetivo: analisar o suporte social de pessoas com HIV/Aids, na perspectiva do Modelo da Determinação Social da Saúde. Método: estudo transversal, realizado em 2015, em um ambulatório de infectologia. A amostra constituiu-se de 116 pessoas com HIV/Aids. A coleta de dados ocorreu mediante entrevista, utilizando-se o formulário sociodemográfi co e a escala de suporte social. Os dados foram analisados por estatística descritiva, e realizaram-se os Testes T de Student e Mann-Whitney para verifi car a associação entre o suporte social e os determinantes sociais de saúde. Resultados: o suporte social total foi satisfatório, o suporte emocional foi infl uenciado pelo uso de tabaco (p=0,0432) e o instrumental, pelo número de pessoas no domicílio (p=0,0003). A principal fonte de apoio do suporte instrumental e emocional foram os familiares externos ao ambiente doméstico representando 66,7% e 56,1%, respectivamente. Conclusão: evidenciou-se que fumantes apresentam menor suporte emocional e que pessoas que residem sozinhas recebem menor suporte instrumental.
Objective: To investigate the statements of people living with HIV during a health follow-up through the WhatsApp® application. Methods: A descriptive study, using a qualitative approach, was conducted with 26 people accompanied by two specialized care services for HIV/AIDS in Fortaleza, Ceará. Data were collected from September 2016 to February 2017, with participants' statements given during the online follow-up and submitted to thematic content analysis. Results: The following categories emerged: difficulties with treatment, antiretroviral dose delayed or missed, side effects, association between antiretroviral drugs and alcohol, use of dietary supplements and medicines, emotional changes, life habits, social rights, physical symptoms, and coping with and committing to with treatment. Conclusion: Follow-up over WhatsApp® improved access to health professionals, by providing an open and immediate communication channel.
Objective: To assess a specific instant messaging application as a tool of care for people living with HIV/aids, based on analysis of the interactions between nurse and patients. Method: Descriptive, quantitative study with 102 patients from two outpatient infectious disease clinics of Fortaleza, Ceará. During four months, participants received a message every 15 days, totaling eight messages, regarding: adherence to antiretroviral therapy; physical activity; social support; self-esteem; anxiety/depression; eating habits; alcohol and drugs; and sexuality. Results: There were 816 interactions, especially for dialogs about performing physical activity (27.87%), sharing of signs and symptoms (18.03%), report of engagement with treatment (9.84%) and requests of information on the intake of medicine (9.84%). Most participants showed satisfaction with the follow-up, with willingness to continue receiving messages (90.58%). Conclusion: The use of this application is a viable strategy to improve care for people with HIV by promoting instant communication.
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