Objectives:  As our knowledge about the experiences of grandparents when their grandchild has a disability is extremely limited, the purpose of this research was to explore the emotional journey of Australian grandparents. Method:  This qualitative research utilised purposive sampling and semi‐structured in‐depth interviews to explore the experiences of 22 Australian grandparents, whose grandchild had been diagnosed with a disability. Results:  Three key themes characterized grandparent's emotional journey: adjusting (the transition from anger to acceptance), the ‘double grief’ (sadness about what might have been for both their child and grandchild) and pride in family (pride in family's ability to adjust to the challenges of the situation). Conclusion:  As the first Australian study to explore the experiences of grandparents when their grandchild has a disability, the research provides important new knowledge about the emotional journey for grandparents. Unlike overseas research, Australian grandparents view themselves as being there to support their own children, rather than ‘holding the family together’. The findings will provide current policy debates about the role of grandparents and highlight the importance of support services that help facilitate grandparent's role within their family.

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Grandparents are central to family functioning and quality of life, but this contribution comes with a significant cost to their own personal well-being. Implications for policy, practice and research are discussed, particularly grandparents' fear that their family could not cope without their support.

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