A 51-year-old woman with COVID-19 infection developed coma and an impaired oculocephalic response to one side. MRI of the brain demonstrated acute multifocal demyelinating lesions, and CSF testing did not identify a direct cerebral infection. High-dose steroids followed by a course of IVIG was administered, and the patient regained consciousness over the course of several weeks. As more patients reach the weeks after initial infection with COVID-19, acute disseminated encephalomyelitis should be considered a potentially treatable cause of profound encephalopathy or multifocal neurological deficits.
This article explores a range of ethical issues that arise in community-based participatory research (CBPR), drawing on literature and examples from practice. The experience of CBPR practitioners adds further weight to the growing critique by many other social researchers of regulatory approaches to research ethics (which focus on rule following in accordance with research governance frameworks, codes of conduct and ethics review procedures). Yet, whilst many of the ethical challenges in CBPR are common to social research generally (informed consent, anonymity, issues of ownership of data and findings), the dynamic, complex and value-based nature of CBPR gives them particular prominence. There are also specific issues relating to the ethics of partnership working, collaboration, blurring of boundaries between researchers and researched, community rights, community conflict and democratic participation that are more frequently encountered in CBPR. Four practice examples are used to demonstrate this argument. These are taken from a young women's community allotment, a community organisation researching poverty, a youth peer research project and a museumbased digital storytelling project. The article concludes that current institutional ethical codes, guidelines and ethical review procedures are not particularly well-suited to CBPR, in that they adopt principle-based and regulatory approaches to ethics; whereas character-and relationshipbased approaches to ethics are also very important in CBPR, which is adopted by many researchers with a strong value commitment to social justice.
This article draws on findings of an international study of social workers’ ethical challenges during COVID-19, based on 607 responses to a qualitative survey. Ethical challenges included the following: maintaining trust, privacy, dignity and service user autonomy in remote relationships; allocating limited resources; balancing rights and needs of different parties; deciding whether to break or bend policies in the interests of service users; and handling emotions and ensuring care of self and colleagues. The article considers regional contrasts, the ‘ethical logistics’ of complex decision-making, the impact of societal inequities, and lessons for social workers and professional practice around the globe.
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