Living Profiles is a health media platform in development that aggregates multiple data flows to help teens with special healthcare needs (SHCN), particularly with regard to self-management and independence. A teen-oriented personal health record (PHR) incorporates typical teen behaviors and attitudes about health and wellness, encompasses how teens perceive and convey quality of life, and aligns with data related to their chronic medical condition. We have conceived a secure personalized user interface called the Quality of Life Timeline, which will assist with the transition from pediatric care to an adult provider through modules that include a mood meter, reminder device, and teleport medicine. With this personalized PHR, teens with SHCN can better understand their condition and its effects on daily activities and life goals and vice versa; additionally, use of this PHR allows for better information sharing and communication between providers and patients. The use of a teen-oriented tool such as Living Profiles can impact teens' overall quality of life and disease self-management, important attributes for a successful transition program.
S OMETIMES political life feels unforced. Other times it can feel like being a rat in a rat-king, a composite being that forms when many rats accidently knot their tails together and get violently dragged around by the common will. 1 Like such rats, we can find ourselves tied up in associations that we can hardly leave by choice, dragged or threatened to be dragged by the vicissitudes of a political will that barely answers to our own. Although we cannot expect release from all the associations tying us together, we obviously ought not to live like rats in a rat-king if we can help it. Avoiding this fate requires perspectival conciliation: acts of political authority expressing the political will must be acceptable to each of our perspectives. 2 Furthermore, how we achieve this aim ought to be consistent with the respect we owe each other as free and equal persons. My focus is on one proposal about how to achieve perspectival conciliation in accordance with this constraint. Its spirit is captured by Jeremy Waldron in the claim that "the social order should in principle be capable of explaining itself at the tribunal of each person's understanding." 3 And this proposal is more precisely expressed in what political philosophers have called the Public Justification Principle. This is the principle that the actions of political authorities-for our purposes, impositions of coercive laws-must be justifiable to all who live under them. 4 But how does public 1 Rat-kings are merely rumored to exist. See Reilly (2017) for a history of purported occurrences. 2 Perspectival conciliation is presupposed in the aim of the philosophical theory known as political liberalism to explain how coercive institutions ought to exist under conditions of reasonable pluralism.
Mark's Gospel is a narrative parable of the meaning of the life and death of Jesus which draws the reader into the personal engagement that takes place in interpretation and appropriation of the text in a life of discipleship.
In this paper, we describe a design study on how families in Los Angeles experience nature, with a particular focus on how using alternative formats for research analysis and presentation can enrich a design research inquiry. Conducted in Pasadena, CA as a part of Super Studio, the year-long design research class emphasized knowledge building and sharing through design methods of analysis, exhibition, and concept prototypes. After conducting interviews and engaging participants with probes, the class built the results into an open-ended knowledge environment. The main observation from the exhibition -that Angelenos have a limited vocabulary for describing nature and their interaction with it -helped to define the opportunity for design intervention that created connection points between Angelenos and nature. There are few attempts to describe how probe returns evolve into design concepts. Showcased is a process that depends on the unique affordances of design as the vehicle for discovery and invention.
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