Down’s syndrome (DS) is the most common chromosomal abnormality seen in live born children and it is the most common genetic cause of intellectual disability. It is associated with abnormalities in many body systems, some of which can cause life threatening complications. This article aims to cover the important aspects to cover when seeing children with DS for their routine follow-up in the neurodevelopmental or general paediatric clinic.
Conclusions There was positive feedback received from trainees, consultants and patients. Trainee led induction using the AccuRx NHS digital accredited system has improved uptake. Clearer appointment letters explaining video consultation will also encourage patient participation. During each rotation managing trainee clinics will be given as a task to a trainee. This will help to ensure sustainability so trainees will continue to deliver clinics remotely with one-to-one consultant engagement, supervision and learning. Birmingham Children's Hospital is looking at redesigning the whole outpatient service to incorporate telemedicine.
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