Purpose To explore the recovery narratives of 13 young women who had fallen ill with severe Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), during childhood and adolescence, with the focus on what they had to say about their past experiences from the perspective of the present. Method A qualitative narrative approach, informed by a phenomenological theoretical perspective, was adopted to explore what the women found significant and meaningful in their recovery process. Data analysis of in-depth narrative interviews was performed which are presented to readers through the stories of two particular participants. Results The first story describes how one participant made a recovery by testing her body’s tolerance and working to create a more confident self. The second story describes a complex exploration of possibilities for action in recovery, along with a struggle to make sense of setbacks and hold on to what has been gained. Conclusion Recovering from ME/CFS emerges as an inter-personal, contextual, fragile and nonlinear process of homecoming, based on gradually rising bodily based self-knowledge. Illness slowly fades away into the background, and there is the prospect of a healthier tomorrow.

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Det er forsket lite på hvordan det er for barn og unge å leve med stomi. De få studiene som er gjort, viser at å ha «pose på magen» er utfordrende og at helsepersonell vet for lite.Sykepleien 2019 107(75395)(e-75395) DOI: https://doi.org/10.4220/Sykepleiens.2019.75395Det er publisert en rekke kvalitative studier om voksnes opplevelse av det å leve med stomi. Forskningen fokuserer på den psykiske, fysiske og sosiale endringen knyttet til det å få en stomi, samt konsekvensene det får for personene. Litteraturgjennomgangen viser at forskning relatert til unge voksne, ungdom og barn med permanent stomi er begrenset. De studiene som er gjort, viser at livet med stomi er utfordrende og at helsepersonell har begrenset kunnskap om den enkeltes personlige erfaringer. FAGUTVIKLING