Objectives: Data on multidisciplinary programs dedicated to home parenteral nutrition (HPN) in Latin America are limited. This study describes the results of the first multidisciplinary pediatric intestinal rehabilitation program for HPN at a public tertiary hospital in Brazil. Methods: We retrospectively reviewed patients aged 0-18 years with intestinal failure (IF) who required parenteral nutrition (PN) for >60 days between January/2014 and December/2020. Results: Fifty-four patients were discharged on HPN (15 achieved enteral autonomy, 34 continued on HPN at the end of the study, 1 underwent intestinal transplantation, and 4 died). The median (IQR) age at the study endpoint of patients who achieved enteral autonomy was 14.1 (9.7-19) versus 34.7 (20.4-53.9) months in those who did not achieve enteral autonomy. Overall prevalence of catheter-related thrombosis was 66.7% and catheterrelated bloodstream infection rate was 0.39/1000 catheter-days. Intestinal failure-associated liver disease (IFALD) was present in 24% of all patients; none of the patients who achieved enteral autonomy had IFALD. All patients showed significant improvement in anthropometric parameters during the HPN period. The sociodemographic characteristics of the patients' family members were mothers less than 20 years old (7.5%), schooling time more than 10 years (55.5%), and household income between 1 and 3 times the minimum wage (64.8%). The 5-year survival rate for HPN is 90%, and 27.7% of patients achieve enteral autonomy.
Conclusion:The treatment of pediatric patients with IF followed by a multidisciplinary pediatric intestinal rehabilitation program with HPN is feasible and safe in the Brazilian public health system.
Este artigo traz os resultados obtidos em uma pesquisa qualitativa como produto final do processo de formação da residência multiprofissional no campo saúde da criança. Teve como objetivo problematizar o trabalho dos residentes multiprofissionais da pediatria de um hospital escola em relação às políticas de saúde. A pesquisa utilizou como instrumento de coleta de dados a entrevista semi-estruturada com os profissionais do campo e a técnica da análise de conteúdo para análise das respostas. Concluiu-se que o Programa de Residência Multiprofissional em Saúde (RMS) tem propiciado uma atuação integral e interdisciplinar quando possível, com desafios relacionados às configurações da política pública de saúde e seus rebatimentos nos processos de precarização do mundo do trabalho, demandando dos profissionais residentes uma intensidade na execução das intervenções em detrimento ao processo de formação.
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