ObjectiveThe aim of this study was to explore family carers’ experiences of training and ongoing support for caring for their child’s gastrostomy, and to get their views on how this could be improved.MethodsA mixed-methods online survey with 146 family carers (eg, parents, grandparents) who care for a child with a gastrostomy. Family carers rated their own experience of training and support and made recommendations for how training and support could be improved for future families.ResultsThe nature and extent of the training family carers reported receiving varied considerably. Many felt that the demonstrations they received in hospital were too brief. Two in five family carers rated their confidence caring for their child’s gastrostomy as very low in the first few weeks after surgery. Parents valued ongoing learning and support from other parents and support from community nurses. Videos and simulation practice were rated as useful formats of training, in addition to face-to-face supervised practice with a clinician. Parents liked how real life the example video shown was, and rated nearly all suggested video topics as ‘very helpful’, especially troubleshooting topics.ConclusionsOur study found substantial variability in family carers’ descriptions of the training and support they received to care for their child’s gastrostomy. Training often did not meet family carers’ needs. We need to invest in better training and support for families and learn from their recommendations. Improvements to training and support for families (eg, through instructional videos) have the potential to improve family carers’ confidence and competence, and reduce the risk of problems and complications which cause harm to children and increase demand on National Health Service (NHS) resources.
While in some European and extra-European countries the incorporation of restorative justice into policy frameworks is a dated and widely studied phenomenon, in others it is a more recent and scarcely researched process. The Scottish Government is making renewed efforts to institutionalise restorative justice including the ambitious goal of making adult restorative justice available nationwide by 2023. In this article, we analyse the consequences of these recent attempts, addressing a gap in knowledge on adult restorative justice in Scotland. We gathered views from justice professionals ( n = 17), involved in organising and delivering adult restorative justice, on the implementation of the policy and the future of Scottish restorative justice. Findings show that participants support expanding restorative justice services, but are sceptical about the Scottish Government’s approach. They advocate for a coordinated but locally sensitive model of restorative justice development, to some extent challenging the stark opposition between ‘purist’ and ‘maximalist’ approaches to the expansion of restorative justice. These findings generate evidence to critically assess Scottish restorative justice policy and its implementation, while drawing implications for the development of restorative justice across Europe.
ObjectiveTo describe and disseminate a package of support for parents who care for children with gastrostomies, consisting of a library of videos and resources to support families from referral for gastrostomy surgery, to long-term support at home.MethodsThe resources were systematically developed and evaluated by parents, hospital and community-based nurses, paediatricians, a surgeon and researchers.ResultsThe videos empower families, reduce their anxiety and increase their confidence, providing support throughout the families’ journey. Surveys and feedback from parents and clinicians show that the video library is seen as providing clear and comprehensive guidance and is suitable for integration into routine practice. To effectively disseminate these resources across a region, the videos need to be shared widely with relevant community and hospital-based teams, and shared through parent networks. The videos should be viewed as one part of a wider package of training and support, in combination with hands-on-practice and clinical support.ConclusionsThe resources described have been developed with and for families. Critically the videos are founded in the lived-experience of families, as well as the expertise of clinicians from community and hospital services. Similar resources are needed to support families performing other types of specialist care. The resources are freely available to any parent or clinical team.
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