Objective: to analyze the impact and burden of care on the Health-Related Quality of Life (HRQOL) of caregivers of individuals with a spinal cord injury (SCI). Method: cross-sectional observational study carried out by reviewing medical records and applying questionnaires. The scale Short Form 36 (SF-36) was used to assess HRQOL and the Caregiver Burden Scale (CBScale) for care burden. Results were analyzed quantitatively. Most patients with SCIs were male, aged 35.4 years old on average, with a predominance of thoracic injuries followed by cervical injuries. Most caregivers were female aged 44.8 years old on average. Results: tetraplegia and secondary complications stand out among the clinical characteristics that contributed to greater care burden and worse HRQOL. Association between care burden with HRQOL revealed that the greater the burden the worse the HRQOL. Conclusion: Preventing care burden through strategies that prepare patients for hospital discharge, integrating the support network, and enabling access to health care services are interventions that could minimize the effects arising from care burden and contribute to improving HRQOL. Conclusão: prevenir a sobrecarga do cuidado por meio de estratégias de preparo para alta, integração da rede de apoio e acesso a serviços de saúde, poderia minimizar os efeitos da sobrecarga do cuidado e contribuir para melhor QVRS.Descritores: Qualidade de Vida; Cuidadores; Traumatismos da Medula Espinhal; Atividades Cotidianas. Sobrecarga del cuidado e impacto en la calidad de vida relacionada a la salud de los cuidadores de individuos con lesión medularObjetivo: análisis del sobrecarga del cuidado e impacto en la Calidad de Vida Relacionada a la Salud (CVRS), de los cuidadores de individuos con lesión medular traumática (LME). Método: estudio observacional, de corte transversal, realizado por revisión de prontuarios y aplicación de cuestionarios. Fueron utilizadas las escalas de Short Form 36 (SF-36) para evaluar la CVRS, Caregiver Burden Scale (CBScale) para Sobrecarga del cuidado y los resultados fueron analizados cuantitativamente. La mayoría de los individuos con LM era del sexo masculino, con media de edad de 35,4 años, con predominio de lesión torácica seguida de lesión cervical. La mayoría de los cuidadores era del sexo femenino, con media de edad de 44,8 años. Resultado:de las características clínicas que aportaron para mayor sobrecarga del cuidado y peor CVRS se destacaron individuos cuadripléjicos y con complicaciones secundarias. Al asociar la sobrecarga del cuidado con la CVRS se logró que cuanto mayor la sobrecarga peor a CVRS.Conclusión: precaver la sobrecarga del cuidado por medio de estrategias de adorno para alta, integración de la red de apoyo y acceso a servicios de salud, podrían minimizar los efectos de la sobrecarga del cuidado y aportar para una mejor CVRS.

The adapted version of the instrument for Portuguese can be used in intervention studies as a tool to measure "nursing knowledge about pressure injury/ulcers" as a dependent variable.

Objective: produce and validate an educational video about bowel emptying maneuvers for training of individuals with neurogenic bowel in bowel rehabilitation process. Method: this is a methodological study developed in four stages: script/storyboard production, validation, educational video production and pilot study, which was conducted from January 2013 to July 2015. Instruments for validation, which was performed from December 2014 to February 2015 by a group of experts. A value equal to or greater than 70% was considered for validation of agreement and relevance of the script and storyboard, using descriptive statistics for data analysis. Results: the script and storyboard were validated by 94% of the experts in the subject and 100% of the technicians. After validation and video recording, the pilot study was conducted with six individuals with neurogenic bowel – 100% of them evaluated the video positively. Conclusion: the video may contribute to the education of individuals with neurogenic bowel.

Objectives:To investigate the characteristics of individuals with spinal cord injury being treated in public hospitals, in Ribeirao Preto, Sao Paulo, and to assess the functional independence according to the degree of injury, the time after injury and the rehabilitation. Methods: Is a cross-sectional observational study conducted from January 2003 to July 2006, comprising 22 patients being treated on these hospitals, with assessment of functional capacity through the Functional Independence Measure (FIM) scale. Results: Of 22 patients who survived after hospital discharge, 91 % were men, with age from 30 to 39 years (36.4 %). The main etiology of the above-mentioned injury was an accident of traffic (50%), 11 patients (50%) presented cervical injury, 10 (45.5%) had chest injury and lumbar injury. In individuals with cervical injury the total FIM score was low, implying less functional capacity. It was observed an increase of the FIM scores with the increase of time after injury, regardless of participation in rehabilitation programs. Conclusions: The results suggest the essential aspects found in this research must be proposed in rehabilitation programs to treat the population within the studied context. Keywords: Spinal cord injuries/rehabilitation; Recovery of Function/physiology; Outcome assessment (health care) RESUMO Objetivos: Investigar características de indivíduos com lesão de medula espinhal atendidos em hospitais públicos de Ribeirão Preto -São Paulo, e avaliar a independência funcional segundo nível de lesão, tempo pós-lesão e reabilitação. Métodos: Estudo de observação transversal realizado de janeiro de 2003 a julho 2006 abrangendo 22 pacientes atendidos nesses hospitais, com avaliação da capacidade funcional pela escala Medida de Independência Funcional (MIF). Resultados: Dos 22 pacientes que sobreviveram após saída hospitalar, 91% eram homens, com idade de 30 a 39 anos (36,4%). A etiologia principal da referida lesão foi acidente de trânsito (50%) e 11 pacientes (50%), tiveram lesão cervical, 10 (45,5%) lesão torácica e um lesão lombar. Nos indivíduos com lesão cervical os escores na MIF total e motora foram menores implicando em menor capacidade funcional. Observou-se aumento dos escores da MIF com o aumento do tempo pós-lesão, independente da participação em programa de reabilitação. Conclusões: Os resultados apontam aspectos essenciais para a proposição de programa de reabilitação para esta população no contexto estudado. Descritores: Traumatismos da medula espinhal/reabilitação; Recuperação da função fisiológica/fisiologia; Avaliação de resultados (cuidados de saúde) RESUMEN Objetivos: Investigar las características de individuos con lesión de médula espinal atendidos en hospitales públicos de la ciudad de Ribeirao Preto, estado de Sao Paulo, y evaluar la independencia funcional según: grado de lesión, tiempo pos-lesión y rehabilitación. Métodos: Es un estudio de observación transversal, realizado de enero de 2003 a julio 2006, abarcando 22 pacientes atendidos en esos hospitales, co...