Arts-based research (ABR) makes many promises, including the opportunity to engage with embodied ways of being and knowing, raise social and political concerns, as well as to address novel, participant-led inquiries. In this critical narrative review of the literature, we examine how disabled children and youth employ ABR methods in research contexts by carefully examining studies that use visual ABR. A secondary aim is to glean methodological insights from the application of ABR to the lives of disabled children and youth to help foster this critical dialogue. We decided to undertake this narrative review of the literature to better understand how ABR is used in pediatric disability contexts.
Background
Children and youth with cancer may find it challenging to integrate illness into their pre‐existing identity—a phenomenon known as illness identity. In this critical narrative review, we explored illness identity among children and youth with cancer.
Methods
Three academic databases were searched. Twenty‐two articles were included in this review and each underwent thematic analysis.
Results
Cancer has both positive and negative influences on the identities of children and youth. Illness identity is expressed creatively through various communicative outlets. Further, external processes such as social support may influence cancer identity. A few studies cited cancer as a hindrance to adult identity development.
Conclusions
Cancer has a profound impact on identity formation among children and youth. Many normative assumptions about time, identity, and child and youth development underlie the existing literature. Future researchers may adopt a critical lens to be inclusive of diverse identity experiences among children and youth with cancer.
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