Purpose: Integrating patient-reported outcomes (PROs) into clinical practice is an increasingly promising strategy for improving patients’ symptoms, communication, and clinical outcomes. The objective of this study was to assess the feasibility, acceptability, and perceived effectiveness of a mobile health intervention designed to collect PROs and activity data as a measure of health status. Patients and Methods: Pilot intervention with 10 patients with gynecologic cancers receiving palliative chemotherapy. The HOPE (Helping Our Patients Excel) study used wearable accelerometers to assess physical activity and the Beiwe research platform to collect PROs, risk stratify patient responses, provide tailored symptom management, and notify patients and clinicians of high-risk symptoms. Feasibility and acceptability were assessed through enrollment and adherence rates; perceived effectiveness was evaluated by patients and oncologists at study completion. Results: The approach-to-consent rate was 100% and participants were 90% and 70% adherent, respectively, to the wearable accelerometers and smartphone surveys. Participants’ mean daily step count was 4,040 (SD=2,270) and increased from week 1 (mean=3,520, SD=1578) to week 3 (mean=4,136, SD=1,578). Active monitoring of participants’ heart rates, daily steps, and PROs throughout the study identified anomalies in participants’ behavior patterns that suggested poor health for 20% (2 patients). Patients and clinicians indicated that the intervention improved physical activity, communication, and symptom management. Conclusion and Relevance: A mobile health intervention that collects PROs and activity data as a measure of health status is feasible, acceptable, and was perceived to be effective in improving symptom management patients with advanced gynecologic cancers. A larger, multisite randomized clinical trial to assess the efficacy of the HOPE intervention on patients’ symptoms, health-related quality of life, clinical outcomes, and health care utilization is warranted.
Background: There is consensus among many medical school deans that exposure to human rights is a necessary component of physician training [7, 8], however little is known about the impact of engagement in human rights programs on students' personal and professional development [15-28]. Objective: This study aimed to examine medical students' experiences in the Mount Sinai Human Rights Program (MSHRP), their motivations for involvement, and the possible influence of engagement on their professional identities, personal growth, and career choices. Methods: Through semi-structured interviews, this qualitative study gathered the experiences of 15 fourth year and recently graduated medical students who participated in the comprehensive training, research, and direct service opportunities provided by the program. Responses were coded using a content analysis approach. Findings: The results of this research highlight the motivations behind students' involvement in a medical human rights program, as well as the challenges they experienced engaging with this work. The study captured students' perceptions of the role of the program on their personal growth, clinical skills, and career vision. Nearly all the students interviewed indicated they developed important, clinically applicable skills that enhanced their traditional medical education. Students indicated that their participation directly influenced their professional identities and future career directions by reinforcing previous interests in human rights and social justice work, impacting medical specialty and residency program selections and fostering commitment to working with immigrant populations. Conclusions: The results of this study indicate that longitudinal involvement with the MSHRP contributed to the acquisition of important clinical skills that were not otherwise attained in students' early medical education. Findings suggest that there is significant opportunity for clinical and leadership development outside the traditional preclinical and clinical setting, and that exposure to human rights education shapes students' professional identities and career paths. Finally, the findings highlight the essential role of human rights and social justice in medical education.
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