Children’s palliative care (CPC) is gaining attention worldwide, facilitated by the exchange of knowledge during regular specialised congresses. This article describes the developments in the Netherlands over the past 15 years. The Foundation for Children’s Palliative Expertise (PAL) was established as a nationwide initiative committed to improving palliative care for children countrywide. This led to the development of the first hospital-based CPC team in 2012, which expanded to a total of seven teams adjacent to children’s university hospitals. Regional networks for CPC were developed in parallel to these teams from 2014 onwards. The networks are a collaboration of professionals from different disciplines and organisations, from hospital to homecare, and have covered the aspects of CPC nationally from 2019 onwards. They are connected through the Dutch Knowledge Centre for CPC. This centre was established in 2018 by the PAL Foundation in collaboration with the Dutch Association for Pediatrics. In 2013, the first evidence-based guideline, ‘palliative care for children’, provided access to knowledge for parents and healthcare providers, and in 2017, a format for an individual palliative care plan was established. Within the Knowledge Centre for CPC, a physician’s support centre for dilemma’s regarding the end of life of children was set up. The efforts to have children’s palliative care embedded in the regular Dutch health care insurance are ongoing.
chance for keeping the acquired attitudes, behaviour and habits in the following years is the highest. As in many subjects, giving the importance to sexual education in this period has many benefits regarding development. This descriptive study was carried out in order to determine knowledge levels and attitudes of doctors and nurses regarding children's sexual development and sex education. Methods The design of the study is descriptive. The study was conducted with doctors and nurses who work at various clinics of two state hospitals located in the Istanbul province. A total of 138 doctors and 150 nurses work at these hospitals. Results It was determined that the majority of cases were female and were aged more than 36 years. 63.5% of the cases have bachelor's degrees and 62.1% were medical doctors. It was determined that the number of correct responses given by the cases regarding some behaviours observed in children aged between 3-6 years and children's sexual development and sex education showed significant differences according to age group, marital status, status of having children, educational status, and occupation (Table 1). Conclusions All of our cases think that it is necessary to provide sex education for children and the majority of cases think that sex education should be provided for children aged between 7-12 years. Introduction Parents whose child is admitted in a hospital are often overwhelmed by an oncoming discharge. Especially when care has to be continued at home, parents instructions are provided only shortly before discharge. As a result discharge may be suboptimal or hospitalisation may be prolonged. The question arises whether family centred care contributes to a more effective and efficient discharge management. Method We studied the literature, organised 4 focus group discussions with 21 nurses in total, and distributed a survey among 15 parent couples. Results Results from several studies show that parents' participation reduces the time of hospitalisation by circa 3 days. In the focus group discussions nurses recognised that the moment of discharge is mainly based on medical criteria. As a result parents instructions start at a late moment, must be performed in a short period of time and sometimes increases the length of stay. The surveys showed that all parents feel responsible for the care of their child during hospitalisation. Of the parents, 64% mentioned that they are involved in the discharge planning, that started at admission. However, only 34% of the parents stated to be informed about discharge criteria. Conclusion Parents' participation shortens the length of stay in hospital. However, the present discharge procedure is not sufficiently family centred and oncoming discharge is not discussed timely. We recommend to discuss discharge planning on a daily base within the team of care providers including the parents, and to involve parents in the discharge manangement. PO-0871
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.
customersupport@researchsolutions.com
10624 S. Eastern Ave., Ste. A-614
Henderson, NV 89052, USA
This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.
Copyright © 2025 scite LLC. All rights reserved.
Made with 💙 for researchers
Part of the Research Solutions Family.