Background:
Despite decreasing rates of HIV among many populations, HIV-related
health disparities among gay, bisexual and other men who have sex with men persist, with disproportional
percentages of new HIV diagnoses among racial and ethnic minority men. Despite increasing
awareness of HIV pre-exposure prophylaxis (PrEP), PrEP use remains low. In addition to exploring
individual-level factors for this slow uptake, structural drivers of PrEP use must also be
identified in order to maximize the effectiveness of biomedical HIV prevention strategies.
Method:
Using cross-sectional data from an ongoing cohort study of young sexual minority men
(N=492), we examine the extent to which structural-level barriers, including access to health care,
medication logistics, counseling support, and stigma are related to PrEP use.
Results:
While almost all participants indicated awareness of PrEP, only 14% had ever used PrEP.
PrEP use was associated with lower concerns about health care access, particularly paying for PrEP.
Those with greater concerns talking with their provider about their sexual behaviors were less likely
to use PrEP.
Conclusion:
Paying for PrEP and talking to one’s provider about sexual behaviors are concerns for
young sexual minority men. In particular, stigma from healthcare providers poses a significant barrier
to PrEP use in this population. Providers need not only to increase their own awareness of and
advocacy for PrEP as an effective risk-management strategy for HIV prevention, but also must work
to create open and non-judgmental spaces in which patients can discuss sexual behaviors without
the fear of stigma.
Many low-income people of color living with HIV are not virally suppressed. More research is needed to understand how socially marginalized, disengaged, or inconsistently engaged people living with HIV (PLWH) contend with antiretroviral therapy (ART)-related challenges, particularly in the context of interactions with HIV care providers. Twenty-seven semi-structured interviews were conducted with low-income Black and Hispanic PLWH in the New York City area who were currently, or recently, disengaged from outpatient HIV health care at the time of the interview. Participants valued patient-centered health care in which they felt genuinely heard and cared for by their HIV clinicians. This desire was particularly pronounced in the context of wanting to change one's ART regimen. Participant emphasis on wanting to manage ART-related challenges with their providers suggests that HIV providers have an instrumental role in helping their patients feel able to manage their HIV.
HIV-related 'conspiracy beliefs' include ideas about the genocidal origin of HIV and the nature and purpose of HIV-related medications. These ideas have been widely documented as affecting myriad health behaviours and outcomes, including birth control use and HIV testing. Most HIV-related research has quantitatively explored this phenomenon, and further qualitative research is necessary to better understand the complexity of these beliefs as articulated by those who endorse them. Moreover, public health in general has over-emphasised the role of the Tuskegee Syphilis Study in explaining mistrust, rather than focus on ongoing social inequalities. Twenty-seven semi-structured interviews were conducted with low-income Black and Latinx people living with HIV who were currently, or had been recently, disengaged from HIV medical care. Beliefs about the role and intentions of the government and pharmaceutical industry in the epidemic highlighted the racism and classism experienced by participants. Notably, however, HIV care providers were not perceived as part of the government-pharmaceutical collusion. Interventions should focus on fostering positive beliefs about HIV medication and building trust between HIV care providers and populations that have experienced ongoing social and economic exclusion. Replacing the phrase 'conspiracy beliefs' with more descriptive terms, such as HIV-related beliefs, could avoid discrediting people's lived experiences.
Pre-exposure prophylaxis (PrEP) is an effective form of HIV prevention, but young sexual minority men face myriad barriers to PrEP uptake. Participants (n = 202) completed a survey on healthcare experiences and beliefs about HIV and PrEP. While 98% of the sample knew about PrEP, only 23.2% reported currently taking PrEP. Participants were more likely to be taking PrEP if they received PrEP information from a healthcare provider and endorsed STI-related risk compensation. Conversely, PrEP uptake was less likely among those with concerns about medication use and adherence. While there were no racial/ethnic differences in PrEP uptake, there were differences in correlates of PrEP use for White participants and participants of color. To facilitate PrEP uptake, clinicians should provide PrEP education and screen all patients for PrEP candidacy. Additionally, public health messaging must reframe HIV "risk", highlight benefits of STI testing, and emphasize the importance of preventive healthcare for SMM.
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