Family caregivers of a loved one with advanced cancer are at risk for developing bereavement complications following the loss of the person they cared for. However, little research has studied caregiving and bereavement experiences as an ongoing process. This study was conducted with the aim of identifying the main elements constitutive of the experience of providing care and assistance to a patient with terminal cancer that influence the grieving process. This qualitative study, conducted among 18 family caregivers, led to the specification of six principal dimensions of the caregiving experience: characteristics of the family caregiver and of the patient, symptoms of the illness, the relational context, social and professional support, and circumstances surrounding the death. Among these dimensions, the constituent elements of the caregiving experience that might positively or negatively influence the grieving process were identified. This knowledge is useful for a more perspicuous identification of caregivers who might experience bereavement complications.

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The essential mandate of medicine is the relief of suffering. However, the quest for an integrated model towards a conceptualization of suffering is still ongoing and empirical studies are few. Qualitative inquiry using 31 in-depth interviews and content analysis was carried out between 1999 and 2001 in 26 patients diagnosed with terminal cancer. The suffering experience was described through a multiplicity of heterogenous elements from the physical, psychological, and social spheres. Systematic synthesis of interview material yielded three apparently irreducible core dimensions. Respondents defined their suffering in terms of 1) being subjected to violence, 2) being deprived and/ or overwhelmed, and 3) living in apprehension. Cassell wrote, in 1991, that to know the suffering of others demands an exhaustive understanding of what makes them the individuals they are (1). Our model can be of use in structuring and eliciting this necessary information. Understanding how a particular patient feels harmed, deprived or overburdened, and overtaken by fear, provides a lever for action tailored to the specifics of that person's experience.

Purpose: To analyze, from the parents’ point of view, the effects of respite services offered at a children's hospice, the Maison André-Gratton. Method: Qualitative methodology (participatory approach) using mainly semi-structured interviews with parents (25 mothers and 8 fathers). Thematic analysis of the data was done. Findings: Respite stays allow parents to get some rest, to feel liberated from the responsibility of taking care of their sick child for a few days, to focus on their other children and their life as a couple, and to break their social isolation. For siblings, the main benefits are having their parents to themselves and sharing activities with them. Conclusion: Two characteristics of the respite program contribute to the positive effects of respite on families — the high quality of the care offered by a qualified staff, and the adequate length of respite stays.