Reminiscence interventions are potentially effective in improving
well-being of persons with memory loss (PWMLs) and may also enhance
relationships with family and professional caregivers. Using a parallel
convergent mixed-methods design, the feasibility of “Memory
Matters” (MM), a mobile device application developed to promote
reminiscence, was evaluated. Eighteen PWMLs and eight family members were
enrolled from a long-term care facility and asked to use MM for 4 weeks.
Participants were observed using MM at enrollment and 2 weeks and completed
1-month interviews. Six staff participants also completed a system review
checklist and/or focus group at 1 month. Three qualitative domains were
identified: (a) context of use, (b) barriers to
use, and (c) MM influences on outcomes.
Participants reported real-time social engagement, ease of use, and other
benefits. However, PWMLs were unlikely to overcome barriers without assistance.
Empirical data indicated that family and staff perceived MM favorably.
Participants agreed that MM could provide stimulating, reminiscence-based
activity.
Family members are prominent providers of necessary care to persons with dementia. The psychological, emotional, and social costs of care have led to the development of interventions to support these families. Although evidence supports the effectiveness of dementia caregiver interventions, few have been implemented into practice. Stakeholder involvement may increase the potential for interventions to be integrated into community contexts. Utilization of community advisory boards (CABs) have been identified as a successful strategy to engage stakeholders in research and intervention development. Yet, little is known about the use of CABs when developing and refining interventions in dementia care. This article presents a case study of a CAB intended to inform the development and translation of an online dementia caregiver resource: Care to Plan. Qualitative thematic analysis of transcripts from seven CAB meetings over a 3-year period identified two major categories. First, the CAB process: who participated, how meetings were conducted, and issues that arose. Second, Care to Plan improvement: how CAB members provided key stakeholder perspectives resulting in changes in language, functionality, substance, and dissemination. Findings demonstrate how CABs can inform gerontological social work when facilitating the development, translation, and implementation of meaningful, community-based resources for dementia caregivers.
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