No abstract

No abstract

No abstract

The proportion of areas having care co-ordination or key worker services is consistent with findings on research with parents of disabled children, which reports that less than one-third of families have a key worker. The extent of multiagency involvement in planning and overseeing the operation of the service was positive but joint funding was more problematic. There was considerable variation in service models and as yet, little is known about whether or how such variations relate to outcomes for children and families. Further research will investigate these issues.

Applying Regulatory Focus Theory (RFT), the authors predicted that among survivors of childhood cancer, quality of life (QOL) may be compromised by prevention-focused parenting characterized by an overly protective concern with possible mishaps and illness recurrence rather than promotion-focused parenting encouraging expectations of recovery and a normal life. Interviews with parents of 64 survivors (M age = 13.83 years) of acute lymphoblastic leukemia (ALL) or central nervous system (CNS) tumors were coded for reports of promotion or prevention-oriented parenting and positive and negative expectancies. Overall, parents expressed more promotion than prevention focus, especially in relation to general rather than illness-related contexts. Greater use by parents of prevention focus in general contexts predicted lower QOL for survivors (as rated both by parents and survivors themselves) and less satisfactory parental well-being. These effects were independent of a main effect for type of cancer, with survivors of ALL having higher QOL.