The aim of our study was to provide a psychosocial and psychiatric evaluation of patients with epidermolysis bullosa (EB; a rare genetic disorder characterized by skin fragility), to assess psychological status, ascertain the presence of any psychiatric disorders and understand the impact of EB on quality of life. Twenty-five patients were assessed using a case record form and several standardized instruments. In 82% of patients, EB had a negative impact on quality of life and 80% of patients experienced psychiatric symptoms. Our findings revealed a high prevalence of psychosocial problems and psychiatric symptoms in patients with EB and suggested that a combined bio-psychosocial approach is the most appropriate therapeutic intervention.
After a brief exposition of Elementary Pragmatic\ud
Model about changes in dyadic interactions, the\ud
validity and clinical usefulness of the model was evaluated\ud
with a newly created test, called SISCI-Sentences. This test\ud
is composed of 90 Sentences with strong psychological\ud
impact. Administration of this test to non-clinical and\ud
clinical participants produced statistically significant differences\ud
between the choices of participants in the two\ud
groups. Implications of these results for the use of these\ud
Sentences in the course of psychotherapy are discussed
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