PurposeLife-sustaining treatment (LST) decisions for patients and caregivers at the end-of-life (EOL) process are supported by the “Act on Hospice and Palliative Care and Decisions on LST for Patients at the EOL,” enforced in February 2018. Itremains unclearwhetherthe act changes EOL decisions and LST implementation in clinical practice. For this study, we investigated patients’ decision-making regarding LSTs during the EOL process since the act’s enforcement.Materials and MethodsRetrospective reviews were conducted on adult patients who were able to decide to terminate LST and died at Seoul National University Hospital between February 5, 2018, and February 5, 2019. We examined demographics, who made the decisions, the type and date of documentation confirming patient's LST, and whether the LST was withheld or withdrawn.ResultsOf 809 patients who were enrolled, 29% (n=231) completed forms regarding LST themselves, and 71% (n=578) needed family members to decide. The median time from confirmation of the EOL process to death and from the Advance Statement to death were 2 and 5 days, respectively (both ranges, 0 to 244). In total, 90% (n=727) of patients withheld treatment, and 10% (n=82)withdrewit. We found a higherwithdrawalratewhen family members made the decisions (13.3% vs. 1.7%, p < 0.001).ConclusionAfter the act’s enforcement, withdrawing LSTs became lawful and self-determination rates increased. Family members still make 71% of decisions regarding LSTs, but these are often inconsistent with the patients’ wishes; thus, further efforts are needed to integrate the new act into clinical practice.
To investigate difficulties doctors experience during life-sustaining treatment (LST) discussion with seriously ill patients and their families after enactment of the LST Decisions Act in February 2018. Materials and Methods A cross-sectional survey was conducted in a tertiary hospital in the Republic of Korea in August 2019. 686 doctors who care for seriously ill patients were given a structured questionnaire, and difficulties during the discussion were examined. Results 132 doctors completed the questionnaire. 85% answered they treat cancer patients. Most (86.4%) experienced considerable difficulties during LST discussions (mean score, 7.4 ± 1.6/10). The two most common difficulties were communication with patients and family and determining when to discuss LST. Two-thirds of doctors found direct discussions with the patient difficult and said they would initiate LST discussions only with family. LST discussions were actually initiated later than considered appropriate. When medically assessing whether the patient is imminently dying, 56% of doctors experienced disagreements with other doctors, which could affect their decisions. Conclusion This study found that most doctors experienced serious difficulties regarding communication with patients and family and medical assessment of dying process during LST discussions. To alleviate these difficulties, further institutional support is needed to improve the LST discussion between doctors, patients, and family.
Background
In the Republic of Korea, life-sustaining treatment (LST) for patients at the end of life should be legally discussed by a doctor according to the LST Decisions Act, which was enacted in February 2018. However, little is known about challenges doctors experience during LST discussion. This study aims to investigate the perceived difficulties of doctors during LST discussions after enactment of the new Act.
Methods
A cross-sectional survey was conducted in a tertiary hospital in August 2019 and included 686 doctors (432 attending physicians, 141 clinical fellows, and 295 residents) who care for seriously ill patients. The doctors were given a structured questionnaire, and difficulties during the discussion process were examined.
Results
A total of 132 doctors answered the questionnaire. Most (86.4%) experienced considerable difficulties during LST discussions (mean score, 7.4 ± 1.6/10). The two most common difficulties were communication with patients and family and determining when to discuss LST. Two-thirds of doctors found direct discussions with the patient difficult and said they would initiate LST discussions only with family. LST discussions were actually initiated later than considered appropriate. When medically assessing whether the patient is imminently dying, 56% of doctors experienced disagreements with other doctors, which could affect their decisions.
Conclusion
In the present study, most doctors experienced serious difficulties during LST discussions. To alleviate these difficulties, further institutional support is needed.
Since the first patient infected with coronavirus disease 2019 (hereinafter COVID-19) was identified in Wuhan, China, in December 2019, and COVID-19 was recognized as a novel infectious disease [1], there have been over 157 million cumulative confirmed cases and nearly 3.28 million deaths attributed to COVID-19 (as of May 11, 2021, WHO Situation Reports [2]); as such, COVID-19 has posed a steadily increasing burden throughout the world. Various levels of social distancing measures have been implemented worldwide in an effort to respond to the crisis and prevent the spread of infection, and hospitals have also enforced strict visitation policies for the safety of patients, families, and medical staff, such as limiting
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