In the article the author highlights that new technologies can significantly change both the life of each person and the development of human civilization as a whole. In this regard, it is necessary to draw attention to the fact of increasing importance of genetic information contained in human DNA in various areas of life of a human being and, due to this fact, the need for legal science to effectively protect the rights of an individual in order to prevent harm caused by the misuse of his genetic information.On the basis of the analysis of the problems arising in connection with the use of genetic information about a person, the author concludes that the legislation in this area needs to be improved also with a view to preventing discrimination against individuals on the basis of genome. By its legal nature, genetic information is an element of personal, family privacy of an individual and is included in the broader concept of privacy of the individual. Therefore it must be protected by law as an intangible benefit (Art. 150 of the Civil Code of the Russian Federation). However, the existing legal regulation is not able to take into account the specifics of genetic information and to provide effective protection against misappropriation and misuse of this information including protection against actions aimed at establishing restrictions on the basis of hereditary diseases and other characteristics in employment, conclusion of contracts of insurance, credit agreements, etc.
No abstract
In the context of the rapid development of new medical technologies, the problem of protecting the rights of citizens and ensuring respect for human dignity is becoming increasingly urgent. The authors come to the conclusion that the protection of the patient’s rights when using genomic technologies can be carried out in the order of claim proceedings. Typical methods of protection are recovery of damages in the event of injury to health, compensation for moral damage in connection with the violation of such non-material benefits as life, health, physical integrity, privacy. Particular attention is given to the problem of children’s rights protection when using genomic technologies, including the right to natural biological origin, the right to know their biological parents and family (genetic) history, since the use of advances in genetics and biomedicine by one generation of people can be a serious challenge to the existence of fundamental freedoms and equality of future generations.At the moment, states should define the limits of possible intervention in the sphere of private (parental) arbitrariness in order to prevent future harm to children born with the help of modern technologies. Consideration of individual problems of the rights of citizens protection when using genomic technologies indicates objective difficulties in finding solutions due to bioethical principles, the need to ensure a fair balance between the interests of the parties to the relevant relationship and third parties, and the need to minimize potential risks. The breakthrough achievements of medical and biological science pose an important task for the state to develop an effective system of legal guarantees aimed at ensuring respect for human dignity, protecting the rights and interests of an individual, preventing the biotechnological construction of a person for the purposes of eugenic practice, etc.
The paper is devoted to the analysis and evaluation of the draft law “On Amendments to Certain Legislative Acts of the Russian Federation Regulating Surrogate Motherhood Issues” aimed at improving legislation in the field of assisted reproductive technologies. The authors highlight the provisions of the draft law that deserve support due to their focus on ensuring the interests of the child and substantiate the appropriateness of enshrining provisions under consideration in the rules of Russian law, in particular, provisions consolidating age restrictions for potential parents, the prohibition of commercial mediation in the field of artificial reproduction, etc. At the same time, the provisions that need to be changed in order to balance the interests of all participants in the emerging public relations are identified and substantiated. The authors subject to critical analysis provisions restricting access of single individuals to surrogacy technologies due to their unreasonableness, contradiction to the provisions of the Constitution of the Russian Federation and conceptual approaches to understanding the family, motherhood and childhood.
Introduction: the paper deals with the problem of civil rights protection when using genomic technologies in the field of artificial human reproduction. Breakthrough advances in medical and biological science set the state an important task of developing an effective system of legal guarantees aimed at ensuring a fair balance of interests of the parties to the relevant relationship and third parties, protecting the rights and interests of an individual, preventing human biotechnological engineering for the purposes of eugenic practice, etc. According to the author, special attention should be paid to the problem of protecting the rights of the child when using genomic technologies, including preimplantation genetic testing. Purpose: to solve the problem of developing the conceptual foundations of civil rights protection under civil law when using genomic technologies in the field of artificial human reproduction, which involves researching the grounds and peculiarities of applying methods of civil rights protection when using genomic technologies, in particular the technology of preimplantation genetic testing, which will make it possible to productively use these constructions; to create a uniform law enforcement practice in this area. Methods: general scientific, interdisciplinary methods common to the science of civil law and biomedicine (e.g. mathematical method, logical method) and methods specific to each of these sciences; logical, comparative legal, formal legal methods. Results: the author has studied the following: the available Russian and foreign regulatory framework and doctrinal sources on the protection of civil rights, especially the rights of the child, in the field of genomic technologies application; the implementation of the methods of protecting civil rights when using genomic technologies and, in particular, protecting the rights of the child, with attention focused on the specific features of the parties involved in legal relations in this area; the peculiarities of the legal nature of civil liability in the considered category of disputes. Conclusions: the paper provides conclusions reflecting the author's conceptual view of the problem of civil rights protection under civil law when using genomic technologies, in particular, the technology of preimplantation genetic testing. There were determined the directions for improving legislation in relation to persons born as a result of artificial reproduction with the use of genomic technologies; the limits of genomic technologies application in the field of reprogenetics and the conditions of liability in case of their violation were justified.
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