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Background and aims The neurological complication and delay of development occur in ne0nates of high perinatal group. Improve the level of patient satisfaction. Methods The developmental assessment was performed in 60 VLBW infants and in 21 children with FAS. There were used Albert scale (gross motor) and KID - RSDI scale (cognitive, fine motor, speech and language, social and adaptive development). Results The comorbidity of VLBW were following: retinopathy of newbon (10%); neurosensory deafness (3,3%), bronchopulmonary dysplasia (5%), congenital heart diseases (12,5%). The medical problems of FAS were intrauterine growth retardation (42,8%, p < 0,05), premature VLBW (28%, p < 0,05), congenital cataract (9,5%), congenital heart diseases (19%). There was significant delay of motor development (-2 mo) in VLBI (45%) compare in infants FAS (19%, p = 0,03). The delay of cognitive development were in 45% of VLBW and in 52,3% infants with FAS on the first year. Mean cognitive delay in VLBW was 3,1 mo; in infants with FAS – 3,9 mo (p > 0,05) at the first year of life, at the second year - 3,3 mo and 5,6 mo respectively (p < 0,05). From the total neonates (112) of high risk group only 81 have been include to early interventional program due to absence of communication between perinatal centre, primary care and rehabilitative service. Conclusions The delay of motor development on the first year of life predominates in very low birth weight infants, the cognitive delay of development on the second years predominates in children with fetal alcohol syndrome. There was a significant risk of important information getting missed.

The aim of the study was to identify needs among young children with life-limiting diseases under 4 years old and their parents living in rural area of Kharkiv region Ukraine during home visiting.Materials and methods. After the creation of the fi rst mobile pediatric palliative team, we reviewed the visits of 31 families at home to defi ne their clinical, and psychological, and social needs. The fi rst mobile pediatric palliative care team has been created for 2015. 31 families who have young children with life-threating diseases were visited to determine their clinical, and psychological, and social needs.Results. All children (31) had severe pathology of the central nervous system: congenital birth defects (29 %); cerebral palsy (35.4 %); genetic disorders (12.9 %). Parental and children's needs were divided into three categories. Medical needs: orthopedic (93.5 %), vaccination (93.5 %), food (80.6 %), posture (61.3 %), salivation (32.2 %), anticonvulsant therapy (16 %). Psychological problems: communication with siblings (100 %); socialization of children (90.3 %); sensory activity (83.8 %), parental relationships (74.2 %). Social issues: the need for support/social worker or volunteers (58.1 %), poverty (58.1 %), communication with local rehabilitation centers (54.8 %), the need for medical equipment (41.9 %).Along with high medical, social and psychological needs of children with incurable diseases, both they and their families feel the lack of pediatric palliative care, and at present they have no access to it. The authors suggest that pediatric palliative care in Ukraine requires its development, application and inclusion in the general health care at all levels of the health system. The establishment of a national concept of modern educational programs, protocols and standards, dissemination of public information communities is also very necessary due to author's point of view.Conclusions. Mobile team that performs home visits may be one of the best ways to start creation of the pediatric palliative care services. Zaporozhye medical journal 2016; №6 (99): 62-66Перший досвід виїзних педіатричних паліативних бригад в Україні О. О. Ріга, Джоан Марстон, А. Ю. ПеньковМета роботи -визначити потреби серед дітей молодшого віку з невиліковними захворюваннями у віці до 4 років та їхніх батьків, які проживають у сільській місцевості Харківської області, за допомогою домашніх візитів.Матеріали та методи. Протягом 2015 року створені перші мобільні команди дитячої паліативної допомоги. Здійснили візити до 31 родини, які виховують дітей раннього віку з невиліковними захворюваннями, для визначення їхніх клінічних, психологічних, со-ціальних потреб.Результати. Діти (31) мали тяжку патологію центральної нервової системи: вроджені вади розвитку (29 %), церебральний параліч (35,4 %), генетичні розлади (12,9 %). Батьківські та дитячі потреби поділили на три категорії. Медичні потреби: ортопедичні (93,5 %), вакцинація (93,5 %), харчування (80,6 %), поза (61,3 %), слинотеча (32,2 %), протисудомна терапія (16 %). Психологічні ...