18. Multicultural and Critical Race Feminisms: Theorizing Families in the Third Wave

Reus, Lee Ann De; Few, April L.; Blume, Libby Balter

doi:10.4135/9781412990172.d92

“…Crucial to the functioning of the project, CHIWOS operates using a community-based research (CBR) approach [23], with the Greater Involvement of People Living with HIV (GIPA) [24] at its centre and follows the theoretical approaches of critical feminism, antioppression and intersectionality [25,26]. Women with HIV have been involved with the project from the beginning and at every stage, and have been hired and trained in research conduction, as peer research associates (PRAs).…”

Section: Study Guiding Frameworkmentioning

confidence: 99%

Cohort profile: The Canadian HIV Women's Sexual and Reproductive Health Cohort Study (CHIWOS)

Loutfy,

de Pokomandy,

Kennedy

et al. 2024

Preprint

0

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Globally, women are at increased vulnerability to HIV due to biological, social, structural, and political reasons. Women living with HIV also experience unique issues related to their medical and social healthcare, which makes a clinical care model specific to their needs worthy of exploration. Furthermore, there is a dearth of research specific to women living with HIV. Research for this population has often been narrowly focused on pregnancy-related issues without considering their complex structural inequalities, social roles, and healthcare and biological needs. For these reasons, we have come together, as researchers, clinicians and community members in Canada, to develop the Canadian HIV Women’s Sexual and Reproductive Health Cohort Study (CHIWOS) to investigate the concept of women-centred HIV care (WCHC) and its impact on the overall, HIV, women’s, mental, sexual, and reproductive health outcomes of women living with HIV. Here, we present the CHIWOS cohort profile, which describes the cohort and presents preliminary findings related to perceived WCHC. CHIWOS is a prospective, observational cohort study of women living with HIV in British Columbia (BC), Ontario, and Quebec. Two additional Canadian provinces, Saskatchewan and Manitoba, will join the cohort in 2018. Using community-based research principles, CHIWOS engages women living with HIV throughout the entire research process meeting the requirements of the ‘Greater Involvement of People living with HIV/AIDS’. Study data are collected through an interviewer-administered questionnaire that uses a web-based platform. From August 2013 to May 2015, a total of 1422 women living with HIV in BC, Ontario, and Quebec were enrolled and completed the baseline visit. Follow-up interviews are being conducted at 18-month intervals. Of the 1422 participants at baseline, 356 were from BC (25%), 713 from Ontario (50%), 353 from Quebec (25%). The median age of the participants at baseline was 43 years (range, 16–74). 22% identified as Indigenous, 30% as African, Caribbean or Black, 41% as Caucasian/White, and 7% as other ethnicities. Overall, 83% of women were taking antiretroviral therapy at the time of the baseline interview and of them, 87% reported an undetectable viral load. Of the 1326 women who received HIV medical care in the previous year and responded to corresponding questions, 57% (95% CI: 54%-60%) perceived that the care they received from their primary HIV doctor had been women-centred. There were provincial and age differences among women who indicated that they received WCHC versus not; women from BC or Ontario were more likely to report WCHC compared to participants in Quebec. They were also more likely to be younger. CHIWOS will be an important tool to develop care models specific for women living with HIV. Moreover, CHIWOS is collecting extensive information on socio-demographics, social determinants of health, psychological factors, and sexual and reproductive health and offers an important platform to answer many relevant research questions for and with women living with HIV. Information on the cohort can be found on the study website (<a href="http://www.chiwos.ca/" target="_blank">http://www.chiwos.ca</a>).

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“…Crucial to the functioning of the project, CHIWOS operates using a community-based research (CBR) approach [23], with the Greater Involvement of People Living with HIV (GIPA) [24] at its centre and follows the theoretical approaches of critical feminism, antioppression and intersectionality [25,26]. Women with HIV have been involved with the project from the beginning and at every stage, and have been hired and trained in research conduction, as peer research associates (PRAs).…”

Section: Study Guiding Frameworkmentioning

confidence: 99%

Cohort profile: The Canadian HIV Women's Sexual and Reproductive Health Cohort Study (CHIWOS)

Loutfy,

de Pokomandy,

Kennedy

et al. 2024

Preprint

0

View full text Add to dashboard Cite

Globally, women are at increased vulnerability to HIV due to biological, social, structural, and political reasons. Women living with HIV also experience unique issues related to their medical and social healthcare, which makes a clinical care model specific to their needs worthy of exploration. Furthermore, there is a dearth of research specific to women living with HIV. Research for this population has often been narrowly focused on pregnancy-related issues without considering their complex structural inequalities, social roles, and healthcare and biological needs. For these reasons, we have come together, as researchers, clinicians and community members in Canada, to develop the Canadian HIV Women’s Sexual and Reproductive Health Cohort Study (CHIWOS) to investigate the concept of women-centred HIV care (WCHC) and its impact on the overall, HIV, women’s, mental, sexual, and reproductive health outcomes of women living with HIV. Here, we present the CHIWOS cohort profile, which describes the cohort and presents preliminary findings related to perceived WCHC. CHIWOS is a prospective, observational cohort study of women living with HIV in British Columbia (BC), Ontario, and Quebec. Two additional Canadian provinces, Saskatchewan and Manitoba, will join the cohort in 2018. Using community-based research principles, CHIWOS engages women living with HIV throughout the entire research process meeting the requirements of the ‘Greater Involvement of People living with HIV/AIDS’. Study data are collected through an interviewer-administered questionnaire that uses a web-based platform. From August 2013 to May 2015, a total of 1422 women living with HIV in BC, Ontario, and Quebec were enrolled and completed the baseline visit. Follow-up interviews are being conducted at 18-month intervals. Of the 1422 participants at baseline, 356 were from BC (25%), 713 from Ontario (50%), 353 from Quebec (25%). The median age of the participants at baseline was 43 years (range, 16–74). 22% identified as Indigenous, 30% as African, Caribbean or Black, 41% as Caucasian/White, and 7% as other ethnicities. Overall, 83% of women were taking antiretroviral therapy at the time of the baseline interview and of them, 87% reported an undetectable viral load. Of the 1326 women who received HIV medical care in the previous year and responded to corresponding questions, 57% (95% CI: 54%-60%) perceived that the care they received from their primary HIV doctor had been women-centred. There were provincial and age differences among women who indicated that they received WCHC versus not; women from BC or Ontario were more likely to report WCHC compared to participants in Quebec. They were also more likely to be younger. CHIWOS will be an important tool to develop care models specific for women living with HIV. Moreover, CHIWOS is collecting extensive information on socio-demographics, social determinants of health, psychological factors, and sexual and reproductive health and offers an important platform to answer many relevant research questions for and with women living with HIV. Information on the cohort can be found on the study website (<a href="http://www.chiwos.ca/" target="_blank">http://www.chiwos.ca</a>).

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Feminist Perspectives on Families

Sharp

¹

,

Blume

²

2016

Encyclopedia of Family Studies

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Feminist perspectives offer a revolutionary critical lens for studying families and for challenging traditional understandings of sex, gender, sexualities, conceptualizations of families, and individuals' family roles. Feminist thought considers issues of power on individual, relational, familial, institutional, structural, and global levels, as well as the interplay of power across these levels. Praxis (i.e., applying research to promote social justice), reflexivity (i.e., critical questioning of research practices), and the use of a diversity of feminist approaches are distinctive features of feminist thought in family studies. Feminist perspectives expose essentialist binaries (e.g., men/women); critique restrictive gendered roles in families (e.g., the disproportionate amount of women's family labor); question biological determinism as well as the myth of separate private/public spheres; and challenge other notions, including: (1) that families are unmitigated safe havens; (2) that there is one monolithic family; and (3) that one type of family is optimal.

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18. Multicultural and Critical Race Feminisms: Theorizing Families in the Third Wave

Cited by 37 publications

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Cohort profile: The Canadian HIV Women's Sexual and Reproductive Health Cohort Study (CHIWOS)

Cohort profile: The Canadian HIV Women's Sexual and Reproductive Health Cohort Study (CHIWOS)

Cohort profile: The Canadian HIV Women's Sexual and Reproductive Health Cohort Study (CHIWOS)

Feminist Perspectives on Families

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