A case of stigma in an urban metropolis in India. What new tools should be used?

John, Annamma S.; Raju, M S; Rao, Padma

doi:10.47276/lr.84.1.92

Cited by 2 publications

(1 citation statement)

References 8 publications

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“…Besides being associated with physical disabilities, leprosy has a strong history of rejection, discrimination, exclusion, and stigma. 2,15–23 Few studies were found concerning social stigma, as it relates to QoL in patients with leprosy. 1,7 Moreover, as far as we know, there are no studies evaluating perceived stigma along with neuropathy and their combined impact on QoL as well as the respective role of each one on QoL.…”

Section: Introductionmentioning

confidence: 99%

Perception of social exclusion, neuropathy, and quality of life among Hansen’s disease patients

Borges-de-Oliveira

Rocha-Leite

Araújo-de-Freitas

et al. 2015

Int J Psychiatry Med

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Section: Introductionmentioning

confidence: 99%

Perception of social exclusion, neuropathy, and quality of life among Hansen’s disease patients

Borges-de-Oliveira

Rocha-Leite

Araújo-de-Freitas

et al. 2015

Int J Psychiatry Med

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Factors Contributing to the Delay in Diagnosis and Continued Transmission of Leprosy in Brazil – An Explorative, Quantitative, Questionnaire Based Study

et al. 2016

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BackgroundLeprosy is a leading cause of preventable disability worldwide. Delay in diagnosis of patients augments the transmission of infection, and allows progression of disease and more severe disability. Delays in diagnosis greater than ten years have been reported in Brazil. To reduce this delay, it is important to identify factors that hinder patients from presenting to doctors, and those that delay doctors from diagnosing patients once they have presented. This study aimed to explore factors associated with the delayed diagnosis of leprosy in Brazil.Methodology/ Principal FindingsThis is an exploratory study using a self-constructed questionnaire delivered to patients attending three leprosy referral clinics across three states in Brazil. Data were analysed to determine associations between variables and the time taken for participants to present to the health-service, and between variables and the time taken for doctors to diagnose participants once they had presented. Participants who suspected they had leprosy but feared community isolation were 10 times more likely to wait longer before consulting a doctor for their symptoms (OR 10.37, 95% CI 2.18–49.45, p = 0.003). Participants who thought their symptoms were not serious had a threefold greater chance of waiting longer before consulting than those who did (OR 3.114, 95% CI 1.235–7.856, p = 0.016). Forty-two point six per cent of participants reported initially receiving a diagnosis besides leprosy. These had a three times greater chance of receiving a later diagnosis of leprosy compared to those not misdiagnosed or not given a diagnosis (OR 2.867, 95% CI 1.288–6.384, p = 0.010).Conclusions/ SignificanceThis study implies a need for patient education regarding leprosy symptoms and the reduction of stigma to encourage patients to present. The high rate of misdiagnosis reported suggests a need to increase clinician suspicion of leprosy. Further education regarding disease symptoms in medical school curriculums may be advisable.

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A case of stigma in an urban metropolis in India. What new tools should be used?

Cited by 2 publications

References 8 publications

Perception of social exclusion, neuropathy, and quality of life among Hansen’s disease patients

Perception of social exclusion, neuropathy, and quality of life among Hansen’s disease patients

Factors Contributing to the Delay in Diagnosis and Continued Transmission of Leprosy in Brazil – An Explorative, Quantitative, Questionnaire Based Study

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